Hello Guest, Welcome to Apnea Board !
As a guest, you are limited to certain areas of the board and there are some features you can't use.
To post a message, you must create a free account using a valid email address.

or Create an Account


New Posts   Today's Posts

7 Years of Pap Therapy and Still Utterly Fatigued. Top doctors Unhelpful
#1
Sad 
7 Years of Pap Therapy and Still Utterly Fatigued. Top doctors Unhelpful
Symptoms:
Extreme daytime fatigue. Morning and afternoon headaches. Nighttime urination. Not feeling well rested or rejuvenated.
Pap Therapy helps, but a negligible amount.


Brief Timeline:
  • Kaiser at home sleep study in December 2016
  • Placed on CPAP with Resmed AirSense 10
  • Tried all different masks, liners, prodding settings, etc.
  • Stanford titration (split night) study in June 2021
  • Placed on Bipap with AirCurve 10 VAuto with recommended settings: IPAP 10, EPAP 5, PS 3 
  • Again tried all different masks, settings, etc.
  • Went to more top Stanford doctors
  • Stanford Sleep study (no pap therapy ~3 days before) in April 2022
  • Went to top ENT sleep surgeons at Stanford and gaslight - everything seems fine. (I can pull up the exact notes if desired)
  • Deviated septum fixed - septoplasty and inferior turbinate reduction in February 2024

Data:
If desired I can attach ENT sleep surgeon notes or provide a summary.
Here is a .tar file of my SD card data (and 02 ring data) for you to import and look at all the data in detail. I really hope this is helpful
Here is a folder with all the above sleep studies and data.


Current Settings:
Resmed AirCurve 10 vAuto
5.8 over 8.6 with PS 2.8
AirFit N30i nasal pillows mask - my lower nostrils have sores from it
Taping mouth with medical cover roll stretch tape
Sleep Mask for morning light


[Image: jgyD6bq.jpeg]

[Image: 5EwMLa1.jpeg]

[Image: R11KN5w.jpeg]


[Image: 1v07m9X.jpeg]

[Image: FqycqKP.jpeg]
Post Reply Post Reply
#2
RE: 7 Years of Pap Therapy and Still Utterly Fatigued. Top doctors Unhelpful
Try increasing PS to 3.6 and trigger sensitivity to high...just a hunch.
Sleeprider
Apnea Board Moderator
www.ApneaBoard.com

____________________________________________
Download OSCAR Software
Soft Cervical Collar
Optimizing Therapy
Organize your OSCAR Charts
Attaching Files
Mask Primer
How To Deal With Equipment Supplier


INFORMATION ON APNEA BOARD FORUMS OR ON APNEABOARD.COM SHOULD NOT BE CONSIDERED AS MEDICAL ADVICE. ALWAYS SEEK THE ADVICE OF A PHYSICIAN BEFORE SEEKING TREATMENT FOR MEDICAL CONDITIONS, INCLUDING SLEEP APNEA. INFORMATION POSTED ON THE APNEA BOARD WEB SITE AND FORUMS ARE PERSONAL OPINION ONLY AND NOT NECESSARILY A STATEMENT OF FACT.
Post Reply Post Reply
#3
RE: 7 Years of Pap Therapy and Still Utterly Fatigued. Top doctors Unhelpful
I wonder if there are any other underlying health issues causing sleep apnea 

 2nd I wonder if you try modafinil a prescription for excessive daytime sleepiness. 

3 - Sleep Study - In Lab - did it say anything about narcolepsy or other sleep disorders 


Here is an article about excessive daytime sleepiness

https://www.aafp.org/pubs/afp/issues/200...narcolepsy.
Post Reply Post Reply


Possibly Related Threads...
Thread Author Replies Views Last Post
Sad [Diagnosis] cpap since 2 years .tired jeje 27 1,174 4 hours ago
Last Post: jeje
  [Diagnosis] 2.5 years trying to figure this out. bwca1963 39 2,082 Yesterday, 10:27 AM
Last Post: bwca1963
Smile [Treatment] [OSCAR] Still Tired After 1.5 Years of Usage - Any Help Please? sowo123 15 848 10-30-2024, 09:15 AM
Last Post: pccpap24
  disappointed in airsense 11 after 12 years with S9 Rejackson 5 2,952 10-29-2024, 02:31 PM
Last Post: tonygill99
  transitional/sleep onset apneas after years of PAP gaspsalot 14 904 10-27-2024, 11:42 AM
Last Post: SarcasticDave94
Question [Treatment] 5 years no relief, would appreciate thoughts FinnianWhitefir 0 224 10-20-2024, 07:37 PM
Last Post: FinnianWhitefir
Thumbsup [Diagnosis] New issues after 4 years of treatment Compton2233 4 340 10-17-2024, 08:15 AM
Last Post: Compton2233


New Posts   Today's Posts


About Apnea Board

Apnea Board is an educational web site designed to empower Sleep Apnea patients.