archangle Wrote:JacoSZ,(time=1305041739) Wrote:But there are a LARGE fraternity of people out there that sell themselves as sleep therapists, who in actual fact know less of the problem than the average CPAP user.
There are a lot of people out there with real MD degrees, residency, years of clinical experience in sleep disorders, specialist training, etc. who don't know much about making CPAP work.
Unfortunately, the "average" CPAP user is not like the more knowledgeable people who read and contribute to this site. There are a lot of people out there happy to act like sheep and just do whatever the medical professionals tell them without ever trying to think about it.
When I talk to real world acquaintances about CPAP, they couldn't be more clueless about their equipment.
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[Pressure] Danger Involved - Changing your own CPAP pressures
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02-23-2012, 08:30 PM
RE: Danger Involved - Changing your own CPAP pressures [copied from old forum]
02-23-2012, 08:30 PM
RE: Danger Involved - Changing your own CPAP pressures [copied from old forum]
travesty Wrote:archangle,(time=1316136106) Wrote:There are a lot of people out there with real MD degrees, residency, years of clinical experience in sleep disorders, specialist training, etc. who don't know much about making CPAP work.This is SO SO true. My mother goes to a sleep doctor who is completely clueless on 90 % of the stuff that is common knowledge here on this forum.
02-23-2012, 08:33 PM
RE: Danger Involved - Changing your own CPAP pressures [copied from old forum]
kongjie Wrote:I have to agree with the general tenor of posts noting the absurdity of putting obstacles between patients and machine adjustments, and easy data collection.
02-23-2012, 08:34 PM
RE: Danger Involved - Changing your own CPAP pressures [copied from old forum]
SandyBottom Wrote:I came to this site because, after having a return of symptoms, I had a new titration study. I had a hell of a time getting the new pressures from the sleep center and it was going to be almost three weeks before my 7 y/o machine could be adjusted. I found out how to put the new pressures in the settings of my machine here just as a RT would do. It took less than 1 minute to do and I consider it as a good thing to start the new pressures now instead of waiting of the DME RT to change the settings.
02-23-2012, 08:35 PM
RE: Danger Involved - Changing your own CPAP pressures
greatunclebill Wrote:SuperSleeper,(time=1316109068) Wrote:Bumping this thread for some of our newer members.if any post ever qualified for a sticky to stay near the top, this would be it. some way or other, this post should be pointed out as a read this first post.
04-17-2012, 01:27 PM
RE: Danger Involved - Changing your own CPAP pressures
Just got this email from the manager of a sleep center who read our CPAP Clinician Setup Manuals Page and objects to us giving out CPAP Clinician Setup Manuals or instructions on how to change CPAP pressures. I invited him to the forum to discuss his concerns if he so wishes. I also decided to share the email with the group here, as it's similar subject matter as that contained in this thread.
Here's the text of the email: Quote:I wanted to express a concern to your web posting regarding adjusting your own CPAP pressure settings.
SuperSleeper
Apnea Board Administrator www.ApneaBoard.com INFORMATION ON APNEA BOARD FORUMS OR ON APNEABOARD.COM SHOULD NOT BE CONSIDERED AS MEDICAL ADVICE. ALWAYS SEEK THE ADVICE OF A PHYSICIAN BEFORE SEEKING TREATMENT FOR MEDICAL CONDITIONS, INCLUDING SLEEP APNEA. INFORMATION POSTED ON THE APNEA BOARD WEB SITE AND FORUMS ARE PERSONAL OPINION ONLY AND NOT NECESSARILY A STATEMENT OF FACT.
DONATE to Apnea Board
Change your own pressure - Get the Clinician Setup Manual for your CPAP here OSCAR - Open Source CPAP Analysis Reporter
04-17-2012, 02:19 PM
RE: Danger Involved - Changing your own CPAP pressures
Wherever they learned to adjust their pressures, they did not learn how to do so. That's the intense difference between this site and others. We encourage taking control over our own health care while at the same time, encouraging common sense.
Then, to feel awful for FOUR years and never consult or tell your doc what you are doing? That's no fault of whoever gave them the clinician manual. That's their own fault. When we take control of our own health care, we take responsibility for it as well.
PaulaO
Take a deep breath and count to zen.
04-17-2012, 06:34 PM
RE: Danger Involved - Changing your own CPAP pressures
(04-17-2012, 02:19 PM)PaulaO2 Wrote: ....That's the intense difference between this site and others. We encourage taking control over our own health care while at the same time, encouraging common sense. Does anyone else wonder why it is the medical profession, broadly speaking, which is so opposed to us, the great unwashed, knowing what they are doing? Or what we need? No other profession or business has the public feeling in such great awe of their work. Is anyone else reminded of Toto pulling the curtain back on the Great and Wonderful Oz? While the medical techs and related providers (some of whom obviously post or write to this forum) lack the knowledge, education and training of medical doctors, it seems that because of that very fact and their own limitations, they worship the doctor figure as a diety, and stand spellbound at the altar of Medicine. And they consequently appear to believe that ONLY a doctor (frequently their "own") has the great knowledge and training necessary to diagnose a disease, course of action, anything - even a hang-nail. You, having a hang-nail and a pair of scissors, are FOOLISH and IGNORANT if you even THINK about, much less CHOOSE, to remove the offending part. After all, you could CUT YOURSELF, FAIL to STERILIZE your equipment and thereby cause an INFECTION, not properly put on the necessary BAND-AID (as all medical treatments require at least a band-aid), and most importantly, FAIL TO DETERMINE THE POSSIBLE FUTURE EFFECTS OF YOUR ACTIONS. These are what I deem "the True Believers". I acknowledge that there are also many ignorant people, all filled with wondrous self-interest, and seemingly incapable of doing more than putting on their clothes while simulataneously trying to figure out how to get money from others - for an unrelated example, see Congress. :grin: Many of these, even some knowledgeable and caring ones not fitting that description, seem to find their way into the medical periphery, where they expound on the wonders of medicine as purchased/rented/used/consumed through their store/company/spa/doctor. Once again, the curtain needs to be pulled back and the public must recognize the inherent self-interest and actual lack of knowledge of what they espouse. The passion which so many of these individuals profess to have is actually not about your well-being, but about theirs - the possible loss of income as well as their self-conceived "standing" with their peers, should you find out that you can pull the levers as well as they - or their doctor. And for the "True Believers", their motivation to inform you of your ignorance takes on the same passion as those of a religious zealot. The "Doctor" simply supplants God. I recognize not all fall into the categories I have described - but unfortunately, too many do. And I have not even begun my tirade with respect to the doctors who also feel the god-complex, and/or those who seem to feel that patients are simply entities with which they have to unfortunately deal. Believe or not, two of my best friends are board certified specialist doctors-but they are real human beings not medico-robots or an occasional gift-dispensing diety-who fully understand, recognize the need for, and welcome patient participation where possible, for whom the phrase "I don't know" is not an epithet never to be uttered, and who, instead of describing something in medical terms as an "idiopathic so-and-so", instead tell you it is something unknown to medicine. (if unsure of term, see here). In other words, people who know they don't know it all, who are fully qualified to find out the initially unknown information where humanly possible, and who don't believe their patients are merely mindless sources of money. People whom I can and do respect. People smart, capable and considerate enough who can and do spend the time to explain what you want to know in terms you can understand. And for these types of physicians, I do say "Thank God!" Thus endeth today's tirade regarding the idiots who believe they know better than you, who choose to enter your world to let you know how ignorant you are, and who may actually believe they are qualified to give the advice they do. Amen! To paraphrase from the song "Desert Pete" by the Kingston Trio, many years ago, "I thank the Lord, I thank SS, and I thank this forum's participants".
Breathing keeps you alive. And PAP helps keep you breathing!
04-17-2012, 06:39 PM
RE: Danger Involved - Changing your own CPAP pressures
And not all DMEs will change pressure for free. Some member not that long ago said his DME charged him $25 to test it on a manometer.
PaulaO
Take a deep breath and count to zen.
04-17-2012, 08:56 PM
RE: Danger Involved - Changing your own CPAP pressures
All I would say to Ken is that he should actually read this forum instead of assuming that there have been no discussions of central apneas ["pauses in breathing where the body is no longer attempting to breath" as Ken put it ].
"Goodnight Chesty wherever you are!"
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