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+--- Thread: bballkj7 (Therapy Thread] (/Thread-bballkj7-Therapy-Thread)
RE: bballkj7 (Therapy Thread] - bballkj7 - 05-24-2022
Hello Gideon! I can try taking the variation out at do:
auto
min/max of 15
epr=0
I will try different pressures but my doc said to start with 15 now, but he said I can play around too. He vouches for OSCAR. Just within reason. I personally a, willkng to do ANYTHING.
Doc hasnt mentioned ASV or BIPAP yet, but maybe? I'll ask. APAP is easy for me to adjust to, but if it's not successful getting rid of apnea I am all ears for ANYTHING else (not to be dramatic, i am really struggling).
I made another new update post on this thread. It has my data from yesterday, but this whole month has been AHI of 8-12 mostly. Still REALLY sleepy, but better than before at the AHI of 43. Muscles still weak, still fatigued. Doc said take magnesium for headaches and try MODANIFIL for sleepiness during the day. I will try tomorrow and see if it helps at 50-100mg (quarter to half pill)
Thanks for the help everyone so far.
RE: bballkj7 (Therapy Thread] - bballkj7 - 05-25-2022
[attachment=42407][attachment=42406]
So I went up to pressure of 15, no variable rate. Settings:
min 15
max 15
epo- 0
And last night my AHI went higher than it ever has (compared to normal on 10-15 with epr 0-1.)
My AHI was 17.46. See screenshots.
I am at a loss. Why would it get double- WORSE by increasing pressure? The doc told me to up it, but it shouldnt get WORSE?
I am really frustrated and tired.
RE: bballkj7 (Therapy Thread] - pholynyk - 05-25-2022
High pressure doesn't eliminate Central Apneas; it can make them worse.
I would suggest you reduce your min and max pressure to 12 for a couple of days and see what happens.
If that reduces the CA somewhat, we can reduce the pressure some more, watching the results each time.
RE: bballkj7 (Therapy Thread] - Gideon - 05-25-2022
I suggested 11 earlier
RE: bballkj7 (Therapy Thread] - bballkj7 - 05-25-2022
Okay I’ll do that tonight. Should I use “auto” or “cpap” since i’m taking away variating in pressure? Neither one bothers me.
I’ll do 12 on cpap mode tonight…
RE: bballkj7 (Therapy Thread] - pholynyk - 05-25-2022
Auto mode with max and min 12 with give you more data. CPAP mode ignores some data - flow limitations, I belive
RE: bballkj7 (Therapy Thread] UPDATE - bballkj7 - 07-05-2022
Hi All! Here is data from a few days this month. Average of 10.0 AHI roughly, I posted some good days (6 ish) and some bad days (10-13).
Im on a pressure of 9, auto pap, epr 0.
Notes:
- My obstructive apneas are pretty much gone, at a pressure of 9.0
- My central apnea has plateaued, and I don't know how to decrease it anymore. Higher pressure always makes it worse. Lower pressure than 8 or so, and the OA's creep back in. So my pressure of 9 has had the greatest average success.
- Was rx'd modafinil to help prevent my fatigue, but it just makes my anxiety worse.
- ASV necessary maybe?
Please, any way we can reduce my Central/ clear airway apneas??? I'm confused. I posted a bunch of screenshots.
Side note: My doctor:
- Doctor doesnt really understand that when I use a higher pressure my central apneas worsen. he is really bad with helping me at all. I cant change Dr's YET, but I'm considering it. He is great and helped me with my migraines using magnesium, and he is great at finding my symptopms, but not so much with cpap management. That is why i'm turning to you guys.
[attachment=43172] [attachment=43173][attachment=43174]
RE: bballkj7 (Therapy Thread] - Gideon - 07-06-2022
two things your flow limits are high, no surprise, your EPR=0, except for the CA it likely should be at 3, DONT SET IT TO 3 !!!
You need an ASV. Ask your doctor to schedule a titration study with and ASV to PROVE efficacy, or just prescribe an ASV and see if the insurance buys it.
At this stage I believe the ASV is the best solution, likely the only solution.
RE: bballkj7 (Therapy Thread] - bballkj7 - 08-30-2022
UPDATE: I started using a phillips dreamwear nasal mask (has one hole for both nostrils).
I don't know IF THIS IS ACCURATE, but for over two months my AHI has averaged at 2 instead of 10.
Any ideas as to WHY this is the case? is it not reporting accurately? I will attach a few screenshots of the new mask's performance. Let me know if this works.
*** my gf said i still sleep with my mouth open occasionally while snoring. according to oscar and my data it doesn't seem to be the case so I don't know.***
[attachment=44224][attachment=44223]
Please advise. I want to be sure I'm okay now, and that maybe i dont need an ASV. Anyone have similar experiences?
RE: bballkj7 (Therapy Thread] - clownbell - 08-30-2022
Well THIS is interesting.
Why do you doubt that the recording is accurate?
Since centrals decreased so dramatically, it makes me wonder whether you could go to EPR 3 to decrease both flow limitations and hypopnea. An expert should be along soon with a better answer.
I also wonder whether some of the centrals were treatment-emergent and have gone away. But you had a LOT of centrals before.