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+--- Thread: [Treatment] Ardeo77 - Therapy Thread (/Thread-Treatment-Ardeo77-Therapy-Thread)
RE: Still symptomatic/weird flow rate? - Ardeo77 - 06-14-2023
Thanks Gideon. Hate to bother you further but I'm having trouble finding out what ATV1 is. Thanks for your help
RE: Still symptomatic/weird flow rate? - Gideon - 06-14-2023
Based on the periodic nature of your flow limits I would slowly bring in EPR, start at 1, Fulltime, and see if that helps your comfort.
The v is just above the space bar.
RE: Still symptomatic/weird flow rate? - OpalRose - 06-14-2023
I think Gideon meant EPR 1 (Fulltime)
RE: Still symptomatic/weird flow rate? - Ardeo77 - 06-14-2023
Lol my mistake, thank you both
RE: Still symptomatic/weird flow rate? - Ardeo77 - 06-18-2023
Hey Gideon, you said I dont seem to have UARs from the data I provided but I saw this post from you when looking through more data. Me and this guy have almost the same AHI and RDI and extremely similar flow rates. Has the definition changed or something?
https://www.apneaboard.com/forums/Thread-Understanding-Flow-Limitations-and-Flow-Rate-Shape
RE: Still symptomatic/weird flow rate? - Gideon - 06-18-2023
His was based on his diagnostic sleep study plus his presentation of large segments of fairly continuous flow limitations without an arousal.
Your view showed flow limits within your arousal periods. You never displayed flow limited breathing outside of the arousal.
RE: Still symptomatic/weird flow rate? - Ardeo77 - 06-18-2023
Other people who saw more nights said otherwise, but considering I have a clear airway, a deviated septum, other nose issues, a RDI of 12 and a AHI of 2 during my test, and the fact I have all the symptoms makes me think I do have UARS. Considering RERAs arent always registered well on CPAPs doesn't make me any more confident that im "sleeping well". I dont really care what the numbers say, I look at my breathing compared to others, and at least from what ive seen (probably on other nights) I have clear flow limitations and 4 other people said so. Its clear I have very weird breathing and many arousals during my sleep. Maybe its not UARs and something else, but almost every other person I spoke to said I had flow limitations and needed to up my minimum pressure. I think Ill just keep doing what im doing instead of throwing my hands up.
https://imgur.com/a/ZcCPsrn
RE: Still symptomatic/weird flow rate? - lexit957 - 06-27-2023
Did you end up getting any better outcomes? Just checking in.
I had a similar at home study result with an RDI much higher than AHI (AHI 7 and RDI 15)
From what I have learned you cannot get the UARS diagnosis without DISE (the drug induced sleep endoscopy.) It seems like such a pain to even try to get that done. The whole thing is frustrating and exhausting.
Keep us posted!
Any ideas? - Ardeo77 - 07-06-2023
Numbers look good, blood work looks good, yet I still feel extremely unrested. Had one night in the years using cpap and experimenting where i felt normal, could never repeat it. Probably because back then I had such wide settings. Maybe im just crazy? Thats how im starting to feel. Whenever I zoom on my flowrate however, it seems every few minutes (if im lucky maybe 30 minutes sometimes), I have very weird and sometimes erratic breathing. I wake up a lot at night and I have tried just about everything. I thought maybe its acid reflux because sometimes I wake up with that. But even know that its under control, still wake up a lot. I wear a N20 mask and use mouth tape if that matters. If anybody wants to look and see if they see something funny, knock yourself out. Id chop of a leg at this point to sleep right.
https://imgur.com/a/3OdzcZZ
RE: Could really use some help - Crimson Nape - 07-06-2023
Ardeo77 - All 3 of your threads deal with your therapy. We request that you keep all your therapy posts in this thread. This allows a reader to see all your previous attempts and the recommendations that you have received, To be a more inclusive thread title, I have renamed it to, "Ardeo77 - Therapy Thread".
-- Red