[Treatment] Struggling to treat UARS with BIPAP - Printable Version +- Apnea Board Forum - CPAP | Sleep Apnea (https://www.apneaboard.com/forums) +-- Forum: Public Area (https://www.apneaboard.com/forums/Forum-Public-Area) +--- Forum: Main Apnea Board Forum (https://www.apneaboard.com/forums/Forum-Main-Apnea-Board-Forum) +--- Thread: [Treatment] Struggling to treat UARS with BIPAP (/Thread-Treatment-Struggling-to-treat-UARS-with-BIPAP) |
RE: Struggling to treat UARS with BIPAP - Humancyclone7 - 04-28-2024 Here is my data from last night using VAuto (PS=5, minEPAP=5, maxIPAP=15) with trigger set to very high. For some reason I started hyperventilating (probably due to trigger change) shortly after starting the therapy, so I only fell asleep at 3am. As expected, maxing out the trigger sensitivity eliminated the CA events (only one event lasting 13s), but I did not feel rested and my Fitbit still indicated fragmented sleep. There were lots and lots of stretches where my breathing looked flow limited (see example). To answer SingleH:
RE: Struggling to treat UARS with BIPAP - Humancyclone7 - 04-28-2024 I have tried 17.5/8 on S mode a few times. One time with trigger set to medium which unsurprisingly gave a ridiculous amount of CA events, the other time with trigger set to very high which bought it down to 0.88 CA/hr however my sleep was extremely fragmented (compared to sleeping without PAP). Flow limitations, in general, were greatly reduced, so I'm not sure why I slept so badly. One theory I have, over than leaks, is overventilation. As outlined in the previous post, I think hypocapnia has the potential to cause arousals/put the body into a state of stress and we can certainly expect hypocapnia at high PS. What I'm concerned about is that things like backup rate and trigger sensitivity do nothing to address this, and only address the lack of respiratory drive hypocapnia causes — by forcing a breathe it aborts a CA event, but it does not address the lack of CO2, in fact, I would imagine that backup rate/trigger actually exacerbate the problem by forcing you to overbreathe. SingleH, you mentioned that I could treat my TECSA by slowly increasing PS in 0.2 increments until I could tolerate PS=9.5 i.e. waiting until my chemoreceptors adapt to the low CO2 levels. For the same reason as above, wouldn't this also be unhealthy? My respiratory drive may have adapted to the low CO2 levels, but my body would still be in a state of hypocapnia, won't it? And by making my breathing more sensitive to CO2, won't it mess with my daytime breathing i.e. encourage me to hyperventilate? It seems to me that the treatment for TESCA should focus on retaining CO2/lowering washout e.g. EERS, rather than trying to adapt to unnaturally low CO2 levels. RE: Struggling to treat UARS with BIPAP - ewriter - 04-28-2024 Hi, I have been helped by the information Sleeprider gave and SingleH. However, i think SingleH would have a different setting from yourself and myself because she has other issues (from what she posted); so her needs will be different. However, i used her Backup Rate information to cut my Backup Rate from 17 to 6 because she is comfortable using 6; and when i actually checked my resting breathing, it is 8-9 BPM and SleepRider said that if i was going to even use Backup Rate (he said i don't need it and i agree, as i do get AHI zero often) then it should actually match my rate. Unfortunately, for about two months, my sleep tech had set the machine to 17 BPM Backup Rate, as that was what the machine indicated; but it's definitely too many BPM as i could feel the machine was trying to force me to breathe. The much lower number is definitely more comfotable. In any case, i agree with SleepRider and will soon try "S" mode (think my tech and i tried ST mode before for awhile and I'm uncertain why we switched to Auto mode; currently I'm using Auto ST mode, based on advice from my sleep tech. SingleH is also using Auto ST mode) So, i'm just writing to ask you have you got any advice from SleepRider? Your issues seem more complex but i used to get numerous CAs and now don't, for which i am very grateful; but i believe the change has come through switching from a ResMed Aire10 AutoSet for Her machine to the iBreeze machine (i am uncertain the Aire10 is actually functioning correctly, as it began to make a "cracking" noise when it first started and i breathed in, something like that and my DME tested it and said it was fine). SleepRider suggested i must increase my pressure (i was at 1.7 this paqst week) and i did so and it helped a lot. I hope i can help in any way. Cheers Paul Note: last year was the worst year of my life apnea-wise as i started having severe panic attacks and had to call the ambulance as i was afraid to enter my apartment building and go to our apartment to sleep; that was partly because my doctor prescribed several SSRIs at the same time (4 in one month) and i actually suggested three of them, knowing nothing much about their effects. The SSRIs made me much worse, since i also take Propranalol (beta blocker) and i think it's common knowledge amongst some doctors that SSRIs and Beta Blockers shouldn't be used together (I don't know for sure). RE: Struggling to treat UARS with BIPAP - TechieHippie - 04-28-2024 I'm also using Auto ST mode with a backup rate of six and a rise time of 600.. even though my respiratory rate is 12-13. My machine says that 99% of my breaths are spontaneous, but still there is something better about the auto ST mode than the auto S mode for me. Lisa RE: Struggling to treat UARS with BIPAP - ewriter - 04-28-2024 Hi Lisa, Thank you for the helpful reply :0). I take note and may switch to the Auto S mode. Sleeprider has advised i would get good therapy from S mode itself (no Auto and no Timed Breaths, Rise Time or Trigger as far as i know); so i might try that instead (I was on S mode before but i still had "flutter" issues so i continued to Auto mode (but as Sleeprider has pointed out, very correctly, my Tech set me at 17 BPM as backup as that is what the machine had inferred; but with PS at only 1.7 which was inadequate -- but that wasn't his fault because two months ago, it seems i couldn't take a PS of 4 but that might have been because i was still using the Aire10 back then on APAP of 6/13 i don't know). When i lie down my BPM is only about 8-9 but when i am sitting up it's about 15. So i followed Sleeprider's advice and set the BPM to 6 (9 - 3) and so far this seems to be OK. Last night was very good for me as, thank God, i was not forced awake by "flutter". My AHI and all other HI etc were all zero. Do you find that even when you get AHI all zeroes, you still have issues with broken sleep, being forced awake, etc.? Thanks again for your great help! Cheers! Paul RE: Struggling to treat UARS with BIPAP - TechieHippie - 04-28-2024 Yes, sometimes. The AHI difference for me for example between auto S and ST is negligible, and as I said auto ST mode says that 99% of my breaths are spontaneous, but when I go look into the Oscar data, I see a lot more irregularities with auto S. But even with the auto ST mode, some nights are more restless than others. Usually it's more about stress and chemical exposure during the day for me then about the settings. I think once you get in the right range, you can't then fine tune a little too. Once you get close it just takes more time because you are then dealing with day to day differences. Do you know about the setting to change the increment to .1 instead of .5? It's buried pretty deep but it helps a lot because then you can change things little bits at a time. I find with this machine that makes a big difference. For example, PS of 4.0 vs 4.1 versus 4.2 makes a difference for me, But over time I have to change it a little bit here and there as I get used to it. I'm not sure what you mean by flutter? RE: Struggling to treat UARS with BIPAP - SingleH - 04-29-2024 (04-28-2024, 07:48 AM)Humancyclone7 Wrote: To answer SingleH: RE: Struggling to treat UARS with BIPAP - SingleH - 04-29-2024 (04-28-2024, 09:25 AM)Humancyclone7 Wrote: One theory I have, over than leaks, is overventilation. As outlined in the previous post, I think hypocapnia has the potential to cause arousals/put the body into a state of stress and we can certainly expect hypocapnia at high PS. What I'm concerned about is that things like backup rate and trigger sensitivity do nothing to address this, and only address the lack of respiratory drive hypocapnia causes — by forcing a breathe it aborts a CA event, but it does not address the lack of CO2, in fact, I would imagine that backup rate/trigger actually exacerbate the problem by forcing you to overbreathe. I also wonder about your first comment, the backup rate as I understand it is papering over the cracks so CA's disappear, but I would assume that its still better to paper over the cracks than simply tolerate a high burden of CA's. I notice on your second set of respiratory waveforms the breathings have those longer extended periods between breaths with the squiggly lines. I dont know if this is normal or not and something I am still trying to identify myself. Regarding TESCA, just to clarify, I didnt mean you can treat your TESCA by slowing increasing PS. What I was advising was a method to increase PS to minimise triggering excess CA's when trying to get to a higher PS level. If you make a large PS change it tends to send CA's skyrocketing so what I was advising was to make a small 0.2 change, wait, let the body adapt, then make another change and so on. However I would still expect you to experience some small jump in CA's each time you do this, but they would be "minimal" rather than excessive in nature. Then once you have reached the PS you desire, you will then need to wait even longer to let the brain adapt to the new level you find that works for you. Regarding the effects on daytime breathing, again I cant comment and hopefully Sleeprider or someone else with more experience can comment. RE: Struggling to treat UARS with BIPAP - ewriter - 04-29-2024 Hi Lisa, Thanks for the input. My tech explained how to find the option to change settings in increments of 0.1. By "flutter" this is a long story but basically i suspected it was a cardiac issue which i experienced as a mild "chest buzzing" in my left breast, starting in 1997. I went to a Cardiologist, who promptly sent me to the allergy specialist. After testing, the allergy specialist found i am severely allergic to dust mites, dander, mold, pollen, probably chemicals and fragrances, etc. and he prescribed Vancnase, a Corticosteroid spray. I had been waking up "for no reason" with shaking, chilled legs and a feeling of suffocation or "something" and, when i used the spray, i slept the night through for the first time in months (note that this is 27 years ago and I still remember it). It turns out that the room i was renting in a shared house, was directly adjacent to the furnace room; and the furnace filters probably had not been changed in years. I left Canada in 2000 and moved to work in the UK. Unfortunately, i did not know i probably had sleep apnea then, and was getting by and working until i started having (apnea, i guess) issues, waking up in the middle of the night for "no reason" and experiencing a more intensive "flutter" in my chest and a rapid heartbeat. I still didn't know what was wrong; and i went desperately from doctor to doctor, having worse and worse panic attacks. Eventually, a doctor in the UK gave me 120 mg Propranalol daily, and this calmed down all the "flutter" symptoms (it feels like a pulsation/wobbling in my heart or chest). In general, i only experience this when i am starting to fall asleep, or when i am already asleep and it forces me awake. To cut the story short, i was tested for sleep apnea in Canada in 2005 and they said I needed a CPAP (AHI 23) but i refused to get one. I continued on without CPAP until 2011, still on the Propranalol, and was very active and busy. Unfortunately, i also drank 1-2 bottles of red wine a week, and some liquers; and eventually, my sleep apnea caught up with me. Thank God, in 2011, i got tested again (this time in Singapore, where i am at the moment) and was told i needed a CPAP as my AHI was 23. I finally gave in, and bought a Respironics System One and started CPAP, using that machine for about 9 more years (pressure started at 12.5 and ended at 14). The machine started making a lot of whining noises in perhaps the third year, and i removed all the insulation. I used an Aire10 on APAP (6/13) for 3.5 years after that and i am now on the Resvent BiPAP. The BiPAP does help with the "flutter". However, it has taken 20 months to find the correct optimal pressure and other settings, since DMEs and doctors in Canada do not help much. RE: Struggling to treat UARS with BIPAP - Humancyclone7 - 04-29-2024 Hey ewriter, I agree that a backup rate can be very uncomfortable when it exceeds your natural BPM. I have heard of some people seeing flow limitations appear purely because of an excessive backup rate messing with their breathing, and I suspect the backup rate is what's causing so many full-awakenings when I'm on ASV mode. Unfortunately my jailbroken machine doesn't allow me to change the backup rate, so that's why I'm keen to fix my sleep-disordered breathing through S mode if possible. I haven't gotten any advice from SleepRider yet, but then again this is my first and only post on Apnea Board so far. I can recommend vagus nerve stimulation as an alternative to SSRIs for treating anxiety and depression, and it should help with the palpitations too. By stimulating the vagus nerve you can directly lower your heart and breathing rate, and force your autonomic nervous system into the parasympathetic state which is conducive to recovery. The more you do it, the easier it becomes for your body to naturally calm itself down after a stressful event. Just be aware that it worsens sleep-disordered breathing, so you can't do it too late in the day. Obviously consult with your doctor first if you want to discontinue SSRIs and to make sure vagus nerve stimulation isn't contraindicated for you. [/url] [url=https://nurosym.com/]Here's a link to the device I use (Nurosym). |