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+--- Thread: Pressure keeps going up but higher AHI?! (/Thread-Pressure-keeps-going-up-but-higher-AHI)
RE: Pressure keeps going up but higher AHI?! - Sleepygirl84 - 04-07-2017
I think they may have already tried auto. I know they have changed around with the setting numerous amounts but I lost track of what they where changing it to and was just seeking results.
I have changed it to what you said and will see what the outcome is.
Have you yourself got complex apnea or spoken to anyone on this board who has?
RE: Pressure keeps going up but higher AHI?! - ajack - 04-08-2017
Last I posted was when you were concerned about the costs and I suggested getting a referral to outpatients of you local hospital, where it is all free, including overnight sleep studies. The aussie system is superb for this and they will do it all for you, including the machine adjustment. If you have a pensioner/concession health card, a free machine if needed. As you may have gathered from the forum, the US system can be a different kettle of fish.
I can understand your timidity, but if you aren't prepared to experiment with your settings, like sleeprider suggested, switching to auto is really a no brainer. It really is a pointless exercise and you would be better working with your doctors.
The forum can provide background information to educate yourself about apnea.
Have you bought the machine yet or are you on a trial?
The settings in your machine and possibly the model of machine, aren't working for you and you should ring your doctor.
RE: Pressure keeps going up but higher AHI?! - Sleeprider - 04-08-2017
(04-08-2017, 02:41 AM)Sleepygirl84 Wrote: I think they may have already tried auto. I know they have changed around with the setting numerous amounts but I lost track of what they where changing it to and was just seeking results.
I have changed it to what you said and will see what the outcome is.
Have you yourself got complex apnea or spoken to anyone on this board who has?
I have innumerable posts on this forum regarding complex apnea. My post inferred that might be a direction to take your therapy if we can't find settings that resolve your excessive events. It's not an easy path to obtain approval for an adaptive servo ventilator (ASV), but it is extremely effective for those that have complex and central apnea, with a somewhat higher level of success being those using the Resmed Aircurve 10 ASV. Your event rate would justify further evaluation, and possibly ASV titration. You have mixed events, however it is not "typical" of complex apnea, and part of the reason for trying auto CPAP is to see your response to changing pressures, and even EPR. These features may improve your OSA which is the immediate goal, but could also make your CA and H events worse. If that is what evolves from my suggestion, then the next step was to evaluate for complex sleep apnea. So, I actually had this in mind, and I'm glad you're aware of the possibility. Have you discussed it with your doctor?
RE: Pressure keeps going up but higher AHI?! - lostie42 - 04-10-2017
(04-07-2017, 09:12 PM)Sleepygirl84 Wrote: Does anyone else here who has suffered with this horrible condition feel like over the years with having sleep apnea that your brain is slowly loosing its memory? I know this is a one of the iussue's if you don't use cpap, but wondering if anyone else feels the same way.
I cant think as clearly as i did when I was in my 20's I feel like each year I am becoming dumb and dumber.
In a word, yes. I feel like I'm 30 going on 90. Hell, I've been told by a doctor a while ago after taking a cognitive test over these concerns, that I'd have dementia within 15 years if I didn't start getting better sleep. The cognitive decline is real. Brain fog, too tame a term. But we gotta keep fighting the good fight and in our desperation find an answer.
RE: Pressure keeps going up but higher AHI?! - Sleepygirl84 - 04-11-2017
Hi Sleeprider.
Please find my results below
http://imgur.com/a/4oyQM
http://imgur.com/a/wzQgK
Any thoughts?
RE: Pressure keeps going up but higher AHI?! - Sleepygirl84 - 04-11-2017
Its a horrible disease - I honestly wish there was more they could do.
I feel your pain! It feels like we have missed out on such much good quality of life doesn't? And so many people who don't suffer from it have no idea what we have to go through. From early teenanger years I remember everyone thinking I was just lazy and had no motivation.
In your head you have all the motivation to do things, its just very hard when your body hasn't had a good rest in years!
I hope one day they can find a cure - I wouldn't wish it upon my worst enemy
RE: Pressure keeps going up but higher AHI?! - Neil1949 - 04-11-2017
Where in Australia can you get a free machine if you have a pension card? Not in Victoria.
RE: Pressure keeps going up but higher AHI?! - ajack - 04-12-2017
AFAIK It's a federal system, my sister got her's for free this way. Through the outpatient system of her public hospital. I don't know if you can access this through a private doctor, but I see no reason why it couldn't be. As you may know, you can get free hearing aids through a private audiologist. I would ring and make enquiries. With a health care card you can get equipment that's seen as medically needed.
RE: Pressure keeps going up but higher AHI?! - Neil1949 - 04-12-2017
Ok i will follow that up with my specialist and with CPAP Victoria any assistance i can get would be welcome.
RE: Pressure keeps going up but higher AHI?! - ajack - 04-12-2017
I'd start at ringing outpatients and then look broader