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One Year Anniversary and Perplexed - Printable Version

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RE: One Year Anniversary and Perplexed - Walla Walla - 08-31-2017

Spy Car, You say you've tried lower EPR before and things were worse. Since you've not shown any charts with a low EPR and worse results I would try it again and than put up your chart. You might of just had a bad night. It happens. You saw last night what happens when you increased your pressure support. Just try using the settings Sleeprider gave you and see the results after a few days.

RE: One Year Anniversary and Perplexed - Spy Car - 08-31-2017

(08-31-2017, 11:47 AM)Walla Walla Wrote: Spy Car, You say you've tried lower EPR before and things were worse. Since you've not shown any charts with a low EPR and worse results I would try it again and than put up your chart. You might of just had a bad night. It happens. You saw last night what happens when you increased your pressure support. Just try using the settings Sleeprider gave you and see the results after a few days.

I'd like you to accept that I've tried lowering my EPR on multiple occasions (in response to advice on this forum) and in my case, I have felt worse every time I've taken that route. I can accept that there are general rules, but lowered EPR settings have been tried and they work badly in my case.

It seems to me like last night's disaster was a result of a too high IPAP setting that made it impossible for me to sleep. I didn't get a wink.

Bill

RE: One Year Anniversary and Perplexed - Walla Walla - 08-31-2017

Hopefully you'll be put on ASV sooner than later. Good luck to you and hope things will go better for you! Big Grin

RE: One Year Anniversary and Perplexed - Sleeprider - 08-31-2017

All I can say is try the settings I sent. Your Autoset can't duplicate the timing and I think it will help for now. Your ultimate solution may be ASV but I havve said before I don't think you will get coverage, but hopefully a prescription

RE: One Year Anniversary and Perplexed - Spy Car - 08-31-2017

(08-31-2017, 01:51 PM)Sleeprider Wrote: All I can say is try the settings I sent. Your Autoset can't duplicate the timing and I think it will help for now. Your ultimate solution may be ASV but I havve said before I don't think you will get coverage, but hopefully a prescription

Is there a supplier on the list that does trial-type rentals on ASVs? I think I may have coverage for an ASV (could take some pressure).

A Bi-value trial hasn't worked yet (practically killed me last night).

After communicating with the sleep doc, he set the machine for 11/4, PS-5.  So I'll try it and any corrections he has for tomorrow.

My apologies for my putting you in a position I know you you best to stay out of. At least I have an alternative approach to try this weekend from a person whose judgement I hold in great store. 

I'll let you all know how this goes. 

Thanks for the help!

Bill

RE: One Year Anniversary and Perplexed - Sleeprider - 08-31-2017

11/5 PS 5 won't help, and I actually expect worse results...good luck. My guess is he is eliminating bilevel before moving on to more effective therapy. For insurance you have to fail both CPAP and BiPAP.

RE: One Year Anniversary and Perplexed - SarcasticDave94 - 08-31-2017

Here's hoping you get to move up to the large blower. I can't tell you what to do, but you have to decide how far to experiment with BiPAP. I gave it an honest few weeks then I had to throw a red NFL challenge flag and say this is it. I had to get an urgent need appointment with the pulmonary duck office. The nurse and on site physician that morning both were like "why aren't you on ASV?". Frankly I stated that I'd like to know that also. BOOM! Dave's enroute to ASV machine.

FWIW take this however you choose: draw a line where you won't cross going any further with BiPAP. ALWAYS do what's best for YOU! DME and duck may make obtaining the blower happen. Supposing insurance is involved, they represent the money. Most important though is yourself. Again hope your situation progresses to a big win for YOU.

Dave B.

RE: One Year Anniversary and Perplexed - Spy Car - 08-31-2017

(08-31-2017, 06:00 PM)SarcasticDave94 Wrote: Here's hoping you get to move up to the large blower. I can't tell you what to do, but you have to decide how far to experiment with BiPAP. I gave it an honest few weeks then I had to throw a red NFL challenge flag and say this is it. I had to get an urgent need appointment with the pulmonary duck office. The nurse and on site physician that morning both were like "why aren't you on ASV?". Frankly I stated that I'd like to know that also. BOOM! Dave's enroute to ASV machine.

FWIW take this however you choose: draw a line where you won't cross going any further with BiPAP. ALWAYS do what's best for YOU! DME and duck may make obtaining the blower happen. Supposing insurance is involved, they represent the money. Most important though is yourself. Again hope your situation progresses to a big win for YOU.

Dave B.

Hey Dave, unless things go wildly bad (possible) I'll have 4 more nights. I thought I was being very clever getting the machine on a Wednesday so I could have it over a weekend and thereby have it for 5 nights (as opposed to the standard 3) as I hoped a bi-level might help.

I'm praying tonight is better. Last night felt like torture.

I'd like to try an ASV. I gather you are liking it. In what whys does it feel different?

Bill

That's when I hope-level might possibly help

RE: One Year Anniversary and Perplexed - Spy Car - 09-01-2017

Here are last night's charts on settings of 11/4 PS 5.

Not great results, but a massive improvement from last night's torture test. I actually got some (very needed) sleep last night. Still, I woke up with the spaced out feeling I strongly associate with a high ratio of CA events. I could have predicted the chart results with pretty high accuracy without having seen them.

Thoughts?

Bill

[Image: Y3xwCmX.png]

RE: One Year Anniversary and Perplexed - Spy Car - 09-01-2017

For those who asked about the ResMed Pulse Ox and Sleepyhead. I reported up thread that I could not get the Sleepyhead Pulse Oximeter Wizard to recognize a compatible device so I thought they were incompatible. Wrong!

What I didn't realize until just now is that Sleepyhead automatically pulled in the SPO2 data (synced in time) during the regular import of the CPAP (or in this case, B-level) data. I guess didn't notice it down in bottom of the hierarchy of charts.

I made a new thread so those not following here might see it.

Bad news is I suspect the sleep doc may have been spinning the results.

http://www.apneaboard.com/forums/Thread-s-o-Sleepyhead-and-the-ResMed-Oximeter-it-works