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Please help with treatment review - Printable Version

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RE: Please help with treatment review - DaveL - 12-08-2021

Thanks so much sheepless. Hat's off to you! You are helping more than you know.

Much appreciated.


RE: Please help with treatment review - DaveL - 12-08-2021

(12-07-2021, 05:33 AM)2SleepBetta Wrote: I have no ideas to add regarding your settings and charts, Dave. You are in good hands getting far better recommendations than I could make. I believe you are an engineer so will give extra details to enable your go or no-go decision early (and I'll have this post to inflict again on others Smile  who do come along with the leak problem we have shared. Oh-jeez )

****second generation Engineer.  Mechanical.  Recent graduate.  1971.  My Father was brilliant. I'm not, but I work hard.  and I'm persistent.  ****

But I can offer an idea and method to stop your lip leaks. (With as wide a collar as you can find and then adapt to (after several days), I claim there is no need for a chin strap which may aggravate upper airway obstruction anyway.) Warning: your eyes will glaze over and you will go to sleep reading this.
****I've ordered a soft cervical collar from Amazon. I expect it in a couple of days.****


I was once an envious person who "could never use a P-10": a mouth breather in sleep with leaky lips to boot.  But always awakened by various FFMs' leaks, I got to the point of doing whatever it would take to stop mouth breathing (and supine sleep) so I could use the highly praised P-10 with its minimal perimeter to be sealed.

*****I have never tried the  P10. I would love to have a simple mask to wear.  *****

The link to my image below shows two solutions that have worked almost totally without failure for more than about three years.  Not shown is my cervical collar. For two years I wore the vest along with my first 3 1/2 in. collar, but found, after about 2 years, that I could go without the vest with a 4 in. collar (as now for several months).

In the pictures, ignore the vest and boxes, as were put inside its pocket, and ignore the chin strap, which was the best and last one I improvised or bought, but cast aside 4? years ago. I do still use the anti-asphyxiation device, largely because its 90 degree turn makes hose management easier, hose draped off my headboard as it is.

****I have a collection of old chinstraps.  Those that never worked; those that worked but quit.  And the Knightsbridge Dual Strap that I've put on so hard it hurt. And it needed a larger mask and headgear*****


Most of all, I recommend the non-prescription Silipos Gel-E-Roll seal you see. It is a mineral backed fabric (from a 4 in X 48  roll) which is elastic length wise. That is my lip seal. It clings, even with occasional drools, but it does-not/will-not adhere like tapes. The first couple seconds against the face it feels like a clammy dead fish. I wash it gently with soap, not often enough, probably, and one seal lasts 6 months or more.

****Interesting!*****

You must have a retainer to hold the seal in position on the face with traction and to press hard enough to keep the seal against lip leak pressure. You need some way to apply a normal or radial force inward toward, say, your uvula. 

My first improvised seal retainer is pictured beside the ruler. It is the top few inches of an old elastic compression stocking. It has double thickness elastic fabric where most needed at the top of the retainer (and stocking), about 3/4 in wide. With the top edge of the seal matched to the top edge of the double layer elastic the pair work fine with a P-10 when the upper edge is placed within 1/8 to 1/4 inch below nostril openings, even a bit lower. The velcro straps are attached to the ends of the retainer, overlapping it a bit there, the hook end being quite short. 

My pose (without my then-usual c-collar) is with the later professionally sewn successor of my DIY retainer and a smaller piece of Gel-E-Roll (2 in x 6 in).

Think of the sealer and retainer pair being similar to the old inner tube and tire pair: the tube for sealing, the tire for tube shape and size restraint against pressure--forgetting about all durability issues.  

Moments ago, I folded a 20+/- in. square bandana on the diagonal and folded that triangle's  long edge down again to have four layers of cloth (for about 3 inches) to cover and compress my upper lip and more before tying it in back. My bet is that bandana would work as a retainer in a pinch and could be improved with some velcro, elastic from a fabric store, scissors and a good stapler. 

One learns techniques for donning all easily. With seal lying as shown on retainer (lower right pic), with two hands grab and pinch together seal and stocking at upper right and left left corners of seal. Stretch it a bit (preloading it) and press it in position against upper lip. Slip fingers around the top edge without losing its preloaded tension, to make the velcro strap connection at side or back (however you designed that). After fastening, with the elastic seal and an elastic retainer one can carefully move them a bit for best alignment and most comfort. With a bandana, it would take more fiddling to get tension right, particularly, to keep from losing tension during placement and when raising or lowering chin after fastening. 


Two caveats: 

---My 95% IPAP is just below 14 cmH2O and I believe the method would withstand much more pressure with more tension in top edge and strap connection of retainer. 
---Chin shape or its relative position to neck fleshiness and size may not allow the method.

One other advantage: Radial inward force is applied to the skull and upper teeth roots, not to a hinged jaw which has anterior-posterior play and can recede a bit causing airflow problems for some persons.

Links: 

---My attachment I've posted a few times attachment.php (889×577) (apneaboard.com)
---My Gel-E-Roll source with the most reasonable price and related non-prescription gel products (4 in. squares and circles) Gel Solutions: Solve Prosthetic Fitting Issues with Gel | Amputee Store . I need a roll of Gel-E-Roll from them, again, but will also try their 4 in x 4 in gel pieces as a substitute after noticing them a moment ago.

Whether you try this approach or not, I wish you good luck, Dave, and improved sleep and therapy.

****I truly appreciate all your thought and effort you put into describing this.  Thank you!*****


Lower Pmin, Leak control - DaveL - 12-09-2021

Good morning,

Tired. I woke for a long time last night.

Lowered Pmin as suggested.
Taped my mouth
Used my Dakota wedge.

Exhausted.  I'll give this a try for a while.

Comments will be really appreciated

Dave


RE: Please help with treatment review - sheepless - 12-09-2021

much too early to draw conclusions but leaks are much lower with no increase in obstructives, including flow limitations. so far so good.

do you see any repetitive patterns in your flow rate, especially in the 1st 45 minutes, viewed at a 10 minute scale? (adjust scale by slider at bottom of events tab.)


RE: Please help with treatment review - nightgagger - 12-09-2021

Were you using the Leukoplast tape by any chance?

Your numbers look good, and sheepless is right, too early to tell.


RE: Please help with treatment review - DaveL - 12-09-2021

Thanks nightgagger! I did buy that tape and it was good. It was tenacious when I went to take it off. I had chapped lips. I don't now.

Thanks sleepless. I'm not at home until late tonight. I'll post after that. Meantime I didn't sleep well last night though myAir gave me a99, with 3 masks on/off. I remember taking it off once. My iWatch app says I was Awake/Disrupted for one hour 19 minutes. I read that as disturbed, and had to read it again.


RE: Please help with treatment review - nightgagger - 12-09-2021

With that tape, you may want to make a little tab (fold over) on a corner and slowly peel it off when you wake. I use my fingers to hold the skin down and peel slowly. On a fresh shaven face it really holds.

As far as chapped lips, I've seen recommendations of using lip balm, then pursing your lips before applying the tape. I haven't done this as I typically purse my lips before applying the tape.

I'm glad it's worked the first night.


RE: Please help with treatment review - sheepless - 12-09-2021

no way I can tell but wonder if the disrupted, disturbed time consists of the 1st 45 minutes or so plus the mask off times. do you know if you were awake or asleep during the 1st 45 minutes or so? I'm also interested in that period whether awake or asleep to see if your flow rate suggests rls/plm.


RE: Please help with treatment review - DaveL - 12-09-2021

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Hope this helps.....iWatch 6/autosleep APP

First awake period was about 1:40 a.m.    Second? at 3:00 a.m.   Third (I'm aware of this...was 3:30 to 4:40 a.m.
Awake/Disrupted 1 hr 19 min
Light Sleep 5 hr 11 min
Still/Restful 1 hr 2 min
Deep Sleep 31 min     

Descriptions are from the AutoSleep App which I had to purchase because the iWatch sleep report was terrible.


RE: Please help with treatment review - DaveL - 12-09-2021

(12-09-2021, 11:21 AM)nightgagger Wrote: With that tape, you may want to make a little tab (fold over) on a corner and slowly peel it off when you wake.  I use my fingers to hold the skin down and peel slowly.  On a fresh shaven face it really holds.

As far as chapped lips, I've seen recommendations of using lip balm, then pursing your lips before applying the tape.  I haven't done this as I typically purse my lips before applying the tape.

I'm glad it's worked the first night.

I folded off each end after experience with 3M's tape.  (History--worked for 3M in London ON plant for 15 years. Bought huge amounts of tape from the company store.  It was factory seconds, or garbage.  Treat the employees right! ;Wink I'm used to needing to be cautious with tape. )

The factory tape was all made with solvents.  4 machines coated the web. one machine put 10,000 pounds of solvent per hair into the air above the plant.  Awful awful stuff.