How concerned should I be about the length of these Centrals? - Printable Version +- Apnea Board Forum - CPAP | Sleep Apnea (https://www.apneaboard.com/forums) +-- Forum: Public Area (https://www.apneaboard.com/forums/Forum-Public-Area) +--- Forum: Main Apnea Board Forum (https://www.apneaboard.com/forums/Forum-Main-Apnea-Board-Forum) +--- Thread: How concerned should I be about the length of these Centrals? (/Thread-How-concerned-should-I-be-about-the-length-of-these-Centrals) |
RE: How concerned should I be about the length of these Centrals? - Sleeprider - 12-05-2018 Way to go! RE: How concerned should I be about the length of these Centrals? - Sleeprider - 12-05-2018 (12-05-2018, 02:26 PM)LookingForward Wrote: I haven't talked to my current DME since last week. They were offended that I requested an AirCurve ASV (the machine I thought I went to the sleep study for) and that I didn't what the DreamStation. That's when I got the run-around about the need for the DreamStation based on my prescription and the wording about the Tidal Volume. They didn't like it that I knew ResMed could do the same thing. This kind of empowerment is what makes this forum special You've come a long way to be able to take back control of your therapy and outcome. It's not easy, but in a few months, you have acquired knowledge that exceeds most of those that get paid to do this. Knowledge is power, but your willingness to follow through with self-advocacy takes it to a new level. BTW, it was back in September I first pointed to ASV or ST-A as your future. http://www.apneaboard.com/forums/Thread-split-Bilevel-machine-advice-needed?pid=272815#pid272815 RE: How concerned should I be about the length of these Centrals? - LookingForward - 12-05-2018 I remember you mentioning the ST-A. I almost bought the ASV out of pocket from Supplier #33 several times in the last month or so. But I kept thinking that I need to wait because I had a feeling that I would end up needing the ST-A instead. I'm glad I held back. Way back in May when I had the first appointment with my current pulmonary doctor, I knew I would end up with a machine and found the ST-A when looking up what was available. When I saw that it was targeted for people with severe COPD or neuromuscular disorders, I printed it and took it to show my doctor ResMed's most recent machine. At the time he said that I would never need a machine that advanced. I think it's also good for others to know that if they are determined to get a ResMed, that with as frustrating some Apria's can be, they only sell ResMed. RE: How concerned should I be about the length of these Centrals? - LookingForward - 12-10-2018 Quick update: I finally got a call back from Apria just before they closed today. The lady was very nice and said that they agreed with me that the ST-A was the correct machine and they will provide it. She said that the copy of the prescription I provided them didn't have the doctor's signature on it so they are working to get a signed copy. They also don't have the ST-A in stock but as soon as they have the signed prescription she can either get the ST-A from another nearby facility or order one and it would take 2-3 days to get in. At that point she will also submit it to my insurance for approval. I also decided to buy an AirCurve 10 VAuto on Craigslist today. It has a scuff mark on top but low run hours. It probably sounds really crazy but I need to return my current VAuto to Lincare as soon as I get the new machine. I've been on a ResMed AirCurve ST two years ago and the shortness of breath was so bad that I finally gave up and returned the device. I just couldn't function at all after using it. My current doctor and the old doctor both have said that it was probably the backup rate that caused it. I really don't know. I just knew that I couldn't continue to have days of barely functioning at all. So although I'm partly celebrating that it's looking more like the ST-A will be happening, I'm really concerned as to how I'll do with it. So I thought if I had an AirCurve VAuto as a backup that I could always sit during the day and try to get a normal balance back to breathing if I need it. If I do well on the new device, I can alway keep this as a backup unit or sell it. Question, the vAuto that I purchased today has a blank SD card in it. I want to try to use the machine soon to make sure it works properly. Should I transfer my SD card to this different device or use the blank SD card? Will it mess anything up if I put my SD card into a different device? Also when I get the ST-A, should I keep my current SD card and return the new one to Lincare with the old device so that I'm keeping all my data? Does Lincare even want the used SD card Back? And will it mess up the ST-A to put an SD Card in that has been used in a VAuto? RE: How concerned should I be about the length of these Centrals? - LookingForward - 12-10-2018 (11-15-2018, 12:49 AM)SarcasticDave94 Wrote:(11-15-2018, 12:07 AM)LookingForward Wrote:(11-14-2018, 11:25 PM)SarcasticDave94 Wrote: BTW if you're interested, here's my thread on the ASV path. Dave, I finally read all they way through your journey! I feel like I have fellow sojourner walking with me You had quite the battle to get your machine. I very much enjoyed reading it though. I should have read it all the way through much sooner though. You had already figured out that Apria only sells ResMed unless a doctor specifically requests something different. I'm not quite sure yet what I'm going to say to Lincare when I return the AirCurve VAuto to them. They still haven't returned a call so I'm guessing it will be a surprise to them when I just walk in to return the machine. I wish I could do it by mail but I know that I need to do it in person. I need the receipt of the return and have them know that I won't be continuing to get the supplies through them. I'll probably just tell them that I secured a machine a different way and then try to evade giving them much other information. RE: How concerned should I be about the length of these Centrals? - LookingForward - 02-24-2019 It's been a while since I updated this thread. I ended up with Shingles for a while and other health issues. In January, I got a DreamStation BiPap AVAPS. It's a good machine. I think the Sleep Technician did a good job finding the right settings for me. I don't have a desire to change them. I still have too much shortness of breath but I think that's neuromuscular related not because of the machine. It's nice having the backup rate. I've also felt a little increase in my muscles due to getting more air at night. I've never used the ResMed AirCurve ST-A so I can't compare that but as far a ResMed compared to the DreamStation, there are things I like about the ResMed better. 1. The humidifier tank is bigger on the ResMed. I always run out of water in tank at night with the DreamStation. Hopefully when winter is over that won't happen. 2. I like the smaller size of ResMed on my table. But that's not a big deal, just a difference. 3. I can't use SleepyHead with the BiPap AVAPS. I miss SleepyHead. I've already sent a message to Bonjour letting him know that I'll gladly Beta Test at some point or just offer information from my SD Card if development gets that far. I am using EnCore but it's just not the same. Nevertheless, I am very grateful for the BiPap AVAPS. It is a good machine for me. My AHI has never been above 1.5 since I started on this machine. 90% of the time it's .5 or lower. Another interesting thing is that I'm actually dreaming again sometimes. It had been years since I was dreaming before the BiPap AVAPS. So I guess that means that I'm going into the various sleep cycles now. I am still somewhat tired but that's getting a little better too. My biggest issue at the moment is I've gained weight and water weight since starting BiPap last summer. But I've changed my diet some in the last few days and can already tell a difference in some of the water retention. Now to start working on a different diet. My hunger seems to have gone crazy since starting on a machine. I started a different thread about the water retention but that can be deleted if a moderator wants too. I didn't know how to delete it. I found some answers doing a search though. Its kind of crazy and sometime scary how dependent I am on needing to use the machine now. I think because of the neuromuscular issue, I no longer have a choice to use it. I know that many of you would never choose to not use a machine. My attitude isn't quite their, but I'm getting there. Thanks for all the help and encouragement getting this far. RE: How concerned should I be about the length of these Centrals? - Sleeprider - 02-24-2019 Congrats on the new machine. The newest #Sleepyhead should be able to display the data if you are interested to look at it. Good luck, and glad we were able to get you on the right track. It took a while. RE: How concerned should I be about the length of these Centrals? - LookingForward - 02-24-2019 I tried to see if it would work when I first got my machine. But it didn’t. I’ll check to see if I have the latest version. Does it matter if I have a Mac? I can use my husband’s Windows computer if that’s better. RE: How concerned should I be about the length of these Centrals? - Gideon - 02-24-2019 There are versions for Mac, Windows and UNIX |