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UK Question, which machine - DumfriesDik - 11-19-2015
I have contacted the sleep clinic to ask if they do supply auto cpap machines now. Still waiting for a reply.
So in the mean time, is there anyone here in the UK, Scotland preferably, have an auto cpap on the NHS? If so, what did you do to get one and how long did you have to wait?
RE: UK Question, which machine - Phill - 11-19-2015
Well, down here in the deep south, of England that is, a couple of weeks after my sleep test I saw the nurse and he gave me an S9AutoSet.
At my appointment 6 weeks later after complaining of the old dry mouth syndrome he gave me a humidifier.
At my appointment 6 weeks later I pointed out that if I took the humidity above 5% there was an excess of water in the pipe so I was given an insulated sleeve to go over it.
My feeling would be that we are given the minimum that the NHS can get away with.
I must knuckle down and look at my setup, as waking in the early hours every morning as I do cannot be right.
The timescale did not seem excessive, for the NHS that is.
Hope that is of some help.
Phill
RE: UK Question, which machine - DumfriesDik - 11-20-2015
Hi Phill
Thanks for the reply.
I must be doing something right. I called the sleep clinic yesterday, had an appointment this morning and walked out with a Resmed S9 autoset. Its only for a months trial, but if I get on with it better than the old S8 I can keep it. I think I know the answer already!
Like you, I wake in the early hours. 4am is not unusual. I am hoping the S9 can shed some light on it for me.
RE: UK Question, which machine - Sleepster - 11-20-2015
Waking in the early hours seems a somewhat common malady. I can't find anything in my data that could be a cause.
Clusters of events seem to come in the early morning for many of us, but I don't see a correlation in my data between them and waking. In other words, waking is not usually accompanied by the clusters, and the clusters don't usually accompany a waking. But the problem is that we don't always have a recollection of waking.
RE: UK Question, which machine - DumfriesDik - 11-20-2015
Just had my first siesta with the S9 and what a difference! It is so frickin quiet! Only had an hour , but I am quite excited by this.
RE: UK Question, which machine - Phill - 11-20-2015
Hope it works for you, did they give you the humidifier as well?
I found my mouth was not quite so dry using it, but it was not as effective as I was expecting.
The ResScan software download on the site is very handy.
Sleepster, yes the early hours waking is a pain!!
I am wondering if my max pressure is set too high as when I wake up air seems to be blowing hard. Interestingly the nurse suggested that I switch the machine off and back on again, this of course puts it back into ramp up mode.
I had worked this out for myself previously, but as I have normally got 4 hours of sleep in by this time I take the mask off and try to get back to sleep without it.
My median sleep from ResScan is 3.95 hours, fairly constant.
RE: UK Question, which machine - Sleeprider - 11-20-2015
Phill, you should download the Sleepyhead software linked at the top of this page and start looking at your data. You will be able to see what pressure is in the morning, and whether it is associated with some major leaks. If you sense the pressure, most likely it is because you have leaks and the air is rushing out of the mask. Taking off your mask every morning and falling back to sleep is a terrible habit. You should try to resolve the problem to get comfortable.
RE: UK Question, which machine - Sleepster - 11-20-2015
(11-20-2015, 10:34 AM)Phill Wrote: I had worked this out for myself previously, but as I have normally got 4 hours of sleep in by this time I take the mask off and try to get back to sleep without it.
The problem is adaptation. As I've adapted to CPAP therapy these awakenings have gotten less frequent, and when they do occur they last for a shorter amount of time.
The best thing to do is check with software to see what happened just before the awakening. Were there apneas? Was the pressure too high?
When you sleep without the mask you reverse the adaptation process. You'll never get adapted if you keep doing that. Not to mention the strain to your cardiovascular system causing problems like high blood pressure and increased risk of heart attack or stroke resulting in death.
RE: UK Question, which machine - Mosquitobait - 11-20-2015
Early morning hours is when most people get REM sleep. Both of my sleep studies showed that most of my REM occurs from 3-5 a.m. I get some from about midnight-2, but maybe 20 minutes at most. Nearly all my apneas show up at those times.
RE: UK Question, which machine - DumfriesDik - 11-22-2015
Hi Phill, no humidifier - but then I have never used one as I prefer the cooler air.
I have managed to get Sleepyhead to work, and there are no events near when I wake up, so I am guessing thats how I will be sleeping. I do get a good six hours straight sleep in, so its not all bad. I just struggle to stay awake after 9pm!
Now then, what do all those lovely graphs mean in Sleepyhead . . .