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+--- Thread: I am totally lost (/Thread-I-am-totally-lost)
I am totally lost - gaydolphinorgy - 01-07-2022
For over half a year I have been trying to get tested. I have had a WatchPat which suggested SDB (moderate RDI), so I got 2 home studies with EEG done. One showed high REM RDI (34), but I only got 7 minutes of REM the entire night (around 2 hours of sleep total). The other showed virtually 0 RDI.
I got an in-lab but again barely got any sleep (around 4 hours) and got 28 minutes of REM, this time with a REM RDI of 16.
I have shelled out money for these tests. I also shelled out money for a DreamStation before I knew about the recall (and they still haven't recalled mine).
Then there are people who say that there are different types of scoring (a/b?) and that if a lab uses one paticular type it could be useless for diagnosing UARS.
I have attached my tests in my previous posts. Is RDI enough to go on a machine?
Should I do yet another in-lab with a different clinic? But I already know that they won't tell me what type of scoring they use or they might lie (for my in lab I asked whether they contain certain measures like pulse variability and they confirmed it but didn't include any of these measures on the report and refuse to give it to me).
I can't keep shelling out money on failed tests that I don't even know the scoring of. I have no idea what to do.
RE: I am totally lost - mper6794 - 01-07-2022
Hi,
_ If were me, maybe I would rent a PAP (preference for the aircurve 20 Resmed Vauto, maybe), rather than going to another lab test..
_ then, plot OSCAR data here, and see what ouro peers say.
All the best and good luck.
RE: I am totally lost - mper6794 - 01-07-2022
....Air Curve 10; apologies..
RE: I am totally lost - mper6794 - 01-07-2022
...REM RDI (34), exactlly like me, at the very beginning, on August, 2017.
....love this concept: REM RDI. My original all night AHI was some 5.0. Luckly, the MD suggest using the brick Cpap, anyway (my re-birth in life); lost 1year, no Oscar, blind. Then, Oscar and the therapy on my hands. 1.5 month on APAP, also not tailored for my UARS. Finally, the Aircurve 10, and gradual improvments and some steps back;
... Amazing! Quite recently, my new ENT (good wise doctor), asked for a New lab study, which pretty much replicated the first one, that is, REM hypopneas around 30/hr, hundredhts of awakenings/arousals, and he said I could without PAP, eventually!!!!
All the best and good luck
RE: I am totally lost - Sleeprider - 01-07-2022
Respiratory disturbances are all about flow limitations, and that is what the Resmed machines target. The Aircurve 10 Vauto is best in class for squashing flow limits and the consequent respiratory effort related arousals and hypopnea. The Philips Dreamstation CPAP really only has a single pressure modified by xFlex, but the Aircurve machines use EPR or a very effective pressure support that gets behind each inhale and helps to sustain it to achieve a normal flow peak. A very good article by Dr Barry Krakow in our wiki helps explain it. http://www.apneaboard.com/wiki/index.php/Flow_Limitation/UARS_and_BiPAP