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+--- Thread: need help (/Thread-need-help--5014)
need help - libbyau - 01-11-2014
I am going to see my doctor to get my results on thursday.
It was suggested after my first sleep study that I rent and try the resmed S9 autoset and H5i with the climate zone tube.
They gave my paper to take and give to my chemist that rents them.
I have been using it for over a week now it takes bit to get use to it.
My questing is some days I wake up good and some I still feel sleepy.
start pressure 5 to 15. No leaks and smiling face.
Is there anything I should be asking the doctor?
Thanks
RE: need help - drgrimes - 01-11-2014
Libby it looks like you are doing pretty well, only a week into it. If you start using Rescan or Sleepyhead, you will easily see what is happening and possibly causing your "sleepy days". It is most likely to be mask leakage. That is the most common problem. the software will also tell you your apnea index or AHI which is how well you are breathing on the machine.
If it's a bit early to think about using the software, you should be able to press the information button, the "I" button twice and it will show you your AHI, and a green or red face for mask leaks. As long as the face is green and your AHI is less than five, you are good.
RE: need help - me50 - 01-11-2014
(01-11-2014, 09:02 AM)libbyau Wrote:
I am going to see my doctor to get my results on thursday.
It was suggested after my first sleep study that I rent and try the resmed S9 autoset and H5i with the climate zone tube.
They gave my paper to take and give to my chemist that rents them.
I have been using it for over a week now it takes bit to get use to it.
My questing is some days I wake up good and some I still feel sleepy.
start pressure 5 to 15. No leaks and smiling face.
Is there anything I should be asking the doctor?
Thanks
You probably have been sleep deprived due to SA and it will take a while to heal your body. For instance, when you get sick with the flu or something else, it takes time to recover from it. Also, you are adjusting to therapy. Just stay with it because without your CPAP machine, it can cause damage to your organs or worse. How long are you sleeping each night? Are you waking up a lot? If you are, what do you do when you wake up?
RE: need help - trish6hundred - 01-11-2014
Hi libbyau,
WELCOME! to the forum.!
Yes, you are right, CPAP can take some getting used to, but it sounds like you are off to a good start, just keep going and stick with it.
Hang in there for more suggestions amd best of luck to you with your CPAP therapy.
RE: need help - Tez62 - 01-11-2014
Wwelcome Libby, well done so far, I'm in Australia too and use the same CPAP and have the same pressures, you are feeling what most peopl that start CPAP feel,the first day or weeek you get a sudden burst of energy then it tapers off and you slowly start to heal, this normally takes about 3-6 months. The timing is different for everyone as we are all different and a lot depends on the severity of sleep apnea we have and how long we have had it. These are the first steps on a long journey for you but a good journey. The best things to do now are learn as much as you can and check your data at least once a week below are the links to Sleepyhead which is free software you can download and youtube videos detailing it. You want to check your AHI which should be as low as possible but below 5 and your leaks which again you want to be as low as possible but below 24l. You will need a card reader unless you PC has one built in.
We can help you installing the software or reading it if you need.
Keep it up and stay cool whichever state your in.
http://sourceforge.net/projects/sleepyhead Link to Sleepyhead
http://www.youtube.com/watch?v=AuAnzBVWYD4 Link to Sleepyhead Youtube Video part 1
http://www.youtube.com/watch?v=bmhXkmeJDIM Link to Sleepyhead Youtube Video part 2
RE: need help - zonk - 01-11-2014
(01-11-2014, 09:02 AM)libbyau Wrote: Is there anything I should be asking the doctor?Hi libbyau, welcome aboard
Thanks
Its quite common to have some adjustment period in the first few weeks but from the sound of it, you,re doing just fine
This is a must reading for CPAP newbies http://www.apneaboard.com/wiki/index.php?title=Tips_for_new_CPAP_users
The smiley face tells you that leak is within the acceptable range (24 L/m) but for actual numbers, you need to check the sleep report on LCD and the data on the SD card. Here is how to check it out http://www.apneaboard.com/resmed-s9-cpap-setup
The clinical manual is available via email, scroll down to section three to ask for the manual. This is important piece of information which is missing from the user guide comes with the machine http://www.apneaboard.com/adjust-cpap-pressure/change-cpap-pressure-settings-adjusting-your-machine-with-a-clinician-setup-manual
ResScan and SleepyHead download links http://www.apneaboard.com/forums/Forum-Private-Files-and-Links
S9 data guide http://www.resmed.com/us/assets/documents/product/s9_escape_auto/data_management_guide/368272r3_s9-series_data-mgt-guide_amer_eng.pdf
Just like any other medical equipment, the machine display set of numbers include AHI, 95th percentile pressure/leak and the SD card gives more detailed information. It might sound complicated but actually its quite simple (check out the links) I,m still at a loss using the DVD player
What to ask the doctor is important question, for a start, learn about the machine and what the numbers means because the doctor will goes by the numbers. The more you know, the better questions you can ask, the better response you,ll get from the doctor. Write down the questions on a piece of paper so you don,t forget to ask and keep reminding yourself ... its not a social visit, don,t talk about cricket/tennis or weather
RE: need help - libbyau - 01-11-2014
Thank you everyone for all the help. Have lot of reading to do before thursday. Its going to be hot here today 27C but with cool seabreaze hopefully wont be that bad.
I am glad I have found this website
RE: need help - Tez62 - 01-11-2014
Hope all goes well Libby, we have 4 days near 40c this week in Melbourne and I'm off to the tennis,, I hope the roof will be closed and air conditioning on
RE: need help - zonk - 01-12-2014
(01-11-2014, 07:23 PM)libbyau Wrote: Have lot of reading to do before thursday.Take your time, the exam is some months away. For now, the numbers that matters most ... AHI, leak, pressure, hours using the machine each night and of course how you feel
You should be checking the sleep report on the LCD, there two info menus ... Standard Info menu (here where you,re seeing the smiley face, AHI and usage). Advanced Info menu: just like standard info menu but reports more detailed info (AHI, leak, pressure, usage) and you can also view machine settings as set in the clinical menu
AHI at 5 or blow is considered good result
Pressure: 95th percentile pressure - pressure was at or below this number for 95% of the time
Leak: 95th percentile leak - leak was at or below this number for 95% of the time, anything below 24 L/m is acceptable (the lower is the better)
Keep talking - there is nothing as such as silly or unimportant question, the question that seem less important, is in fact is the most important
