Hello Guest, Welcome to Apnea Board !
As a guest, you are limited to certain areas of the board and there are some features you can't use.
To post a message, you must create a free account using a valid email address.

or Create an Account


New Posts   Today's Posts

[Treatment] Apnea causing stroke/TIA, undertreated & gaslighted
#11
RE: Apnea causing stroke/TIA, undertreated & gaslighted
Okey! I'm just so relieved to have a nights sleep that didn't look dire (to me at least - and my hypopnea/hypoxia has been serious business) that I want to see another night or two before tweaking any pressures.

I know there's info on the board somewhere on sizing a cervical collar or pillow so I have to look for that. Since I got such a huge result from my travel pillow kludge I want to see if I can get a real one ASAP. Can't size one in person, you can't buy stuff except online.

So much gratitude here --- hoping this is the real fix!

I-love-Apnea-Board
Post Reply Post Reply
#12
RE: Apnea causing stroke/TIA, undertreated & gaslighted
Your graphs are a beautiful sight, no clutter, just the essentials visible.

Agree about clumps of flow limitation to watch.

Pretty good....
Post Reply Post Reply
#13
RE: Apnea causing stroke/TIA, undertreated & gaslighted
Reply to Coutherino -

What concerns me, scares me, about the resp rate, tidal volume, and the rest is the very real history of stroke and TIA during sleep. Apnea is a very strong contributor to cardio/cerebrovascular incidents. I have had one stroke for sure, many TIA's - the last ones may or may NOT have actually been transient! - due to combinations of blood pressure and apnea/hypnopea making me hypoxic.

Every single incident over 18 months has been while asleep. This is rather dire until proven otherwise, as far as I am concerned.


But the good news! Look at last night's graph -- ZERO events except the mask leak. That's fixable, and I have a different mask in mind. 

This is using my kludgy travel pillow so now I need a real solution to that. I know I was back sleeping, I woke up that way.

Once again Thanks Thanks Thanks


Attached Files Thumbnail(s)
   
Post Reply Post Reply
#14
RE: Apnea causing stroke/TIA, undertreated & gaslighted
Third night in a row. Zero! apnea. 2 small centrals. I have more work to do but you guys nailed it for me. I'm sending a donation now.
Post Reply Post Reply
#15
RE: Apnea causing stroke/TIA, undertreated & gaslighted
Congrats on your win
INFORMATION ON APNEA BOARD FORUMS OR ON APNEABOARD.COM SHOULD NOT BE CONSIDERED MEDICAL ADVICE. ALWAYS SEEK THE ADVICE OF A PHYSICIAN BEFORE SEEKING TREATMENT FOR MEDICAL CONDITIONS, INCLUDING SLEEP APNEA. INFORMATION POSTED ON THE APNEA BOARD WEBSITE AND FORUMS ARE PERSONAL OPINION ONLY AND NOT NECESSARILY A STATEMENT OF FACT.
Post Reply Post Reply
#16
RE: Apnea causing stroke/TIA, undertreated & gaslighted
Thank you, though I didn't do anything! You all did the heavy lifting.
I'll do my best to spread the word, and help others.
Post Reply Post Reply
#17
RE: Apnea causing stroke/TIA, undertreated & gaslighted
Quick update: With the kludgy travel pillow neck brace to prevent the positional (chin-tuck) apnea I was still getting a couple of O2 drops to 88-ish per night. 

I switched to a CVS cervical collar 2 nights ago, had one night with no O2 drop, last night had one down to 91, but more apneas (AHI 1.0 up from approx 0.5)

I expect the collar to be a trial and error exercise.

Does it make sense to tweak levels while I'm looking for the right collar, or do one step at a time?


--- side note:


It may not be an exaggeration to say this board saved my life. With my stroke history and interaction between apnea and BP levels, it's very likely I would have suffered a major incident because of nightly hypoxemia. 

If there are any MD's on the board I'd sure like to get some insight into why 4 major medical centers didn't look for this and catch it.

I notice there are no Wiki articles on the implications of apnea for stroke survivors - nor how the simplistic AHI does them a disservice. If there's interest I'd like to contribute some of what I've learned over this last horrible 18 months! Including new information on replacing AHI with something more useful.

THANK YOU again.


Attached Files Thumbnail(s)
   
Post Reply Post Reply


Possibly Related Threads...
Thread Author Replies Views Last Post
Sad [Health] Low o2 causing messed up bloodwork Jpm6179 0 46 6 hours ago
Last Post: Jpm6179
  Can Mild Sleep Apnea With AHI 14 Be Fatal ? Can A Sleep Apnea Sufferer Die In Sleep ? EastWeekender 9 223 Yesterday, 08:01 PM
Last Post: LuminousOne
  [Diagnosis] Cymbalta causing Sleep Apnea? bibo1117 5 145 Yesterday, 10:41 AM
Last Post: greatunclebill
  White noise / mask noise causing poor sleep? P30i donsburg 5 212 11-17-2024, 03:09 AM
Last Post: donsburg
  mask causing pimples and baggy eyes! Precie 5 198 11-14-2024, 01:50 PM
Last Post: Precie
Gross Back strap causing itchy scalp SuzieQsleep 1 198 09-21-2024, 11:19 PM
Last Post: Phaleronic
  I think my mask is causing eye bags when I wake up cpap4uars 15 11,902 09-12-2024, 12:14 PM
Last Post: Jstalez


New Posts   Today's Posts


About Apnea Board

Apnea Board is an educational web site designed to empower Sleep Apnea patients.