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24 years old, Central Sleep Apnea only. Check out my OSCAR data?
Hi all, I've suffered from being extreme tiredness throughout the day for at least ~5 years. Really not fun for a 20-something year old that is "supposed to have energy". I finally got a home sleep study done which then lead to an in lab titration study. Turns out I have moderate central apnea, with an AHI of ~20. From what I've read about central apnea, it seems it is mainly due to brain injuries?? Which scares me.
Anyways, I bought an ASV online because I couldn't wait for insurance, DME, etc. I wanted treatment ASAP. I've been using it for a week and two days now, and am still very tired throughout the day.
Is there anything you notice about my OSCAR charts that could explain why? Do I just give it more time? Thanks guys.
RE: 24 years old, Central Sleep Apnea only. Check out my OSCAR data?
First of all, most of the central and complex sleep apnea we see on this forum does not have a diagnosed neurological cause, but is what we call idiopathic. There is CSA but we don't know why. In your case it is fully resolved with the ASV, so the next step is to try to find settings that give you the restorative sleep you need, while continuing to keep your event rate low or zero. There is nothing obvious in your charts. Your respiration rate, volume and everything else looks good. With EPAP min 5.0, EPAP max 8.0, PS min 3.8 and PS max 15.0 you are very close to default settings for ASV auto, but apparently you have found that disruptive to your sleep. What I see in these charts is that you can use a fixed ASV with and EPAP min of 5.0. You just don't need any higher expiratory pressure to maintain a patent airway. I think you should drop PS min to 3.0 and PS max to 10.0. We can only observe if that results in events that are not fully addressed and then make adjustments from there. The objective is to limit the pressure response of the machine in hopes of avoiding sleep disruption while maintaining your excellent efficacy. Other than that, you have a bit of leak issue, but while it may be disruptive, it is not affecting therapy efficacy. If you ever get a chance, try the Airfit P10 which is a smaller, lighter, and quieter mask.
INFORMATION ON APNEA BOARD FORUMS OR ON APNEABOARD.COM SHOULD NOT BE CONSIDERED AS MEDICAL ADVICE. ALWAYS SEEK THE ADVICE OF A PHYSICIAN BEFORE SEEKING TREATMENT FOR MEDICAL CONDITIONS, INCLUDING SLEEP APNEA. INFORMATION POSTED ON THE APNEA BOARD WEB SITE AND FORUMS ARE PERSONAL OPINION ONLY AND NOT NECESSARILY A STATEMENT OF FACT.
RE: 24 years old, Central Sleep Apnea only. Check out my OSCAR data?
How did you choose your initial settings? Did you have a titration study?
As Sleeprider says, it’s not necessarily brain injury, but it often is neurological in origin. Sometimes it’s due to biochemical causes, such as like w sensitivity to CO2 (which is what drives our breathing reflex).
I’m glad you got it diagnosed!
Since you’ve bought it, work on the settings that let you get restorative sleep. Eventually there are alternatives to ASV that you can try if you’re still not getting good sleep after a few months: acetazolamide (didn’t work for me, increases risk of kidney stones) or EERS (which still requires CPAP).
INFORMATION ON APNEA BOARD FORUMS OR ON APNEABOARD.COM SHOULD NOT BE CONSIDERED AS MEDICAL ADVICE. ALWAYS SEEK THE ADVICE OF A PHYSICIAN BEFORE SEEKING TREATMENT FOR MEDICAL CONDITIONS, INCLUDING SLEEP APNEA. INFORMATION POSTED ON THE APNEA BOARD WEB SITE AND FORUMS ARE PERSONAL OPINION ONLY AND NOT NECESSARILY A STATEMENT OF FACT.
