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[Symptoms] Undiagnosed CSA since 9 years old
#1
Undiagnosed CSA since 9 years old
What would you expect a person’s life would be like if they had undiagnosed CSA since they were 9 years old and now they are 53?

Thank you!
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#2
RE: Undiagnosed CSA since 9 years old
(09-12-2023, 06:25 PM)Sleepwalking Wrote: What would you expect a person’s life would be like if they had undiagnosed CSA since they were 9 years old and now they are 53?

Thank you!


Unknowable unless you're just such a person.  I suspect such a person would have a lot of health issues.

If it's you, why not tell us what life is like for you?  Or is this some sort of trick question??   Bigwink

Just wondering what your getting at...   Thinking-about
SuperSleeper
Apnea Board Administrator
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INFORMATION ON APNEA BOARD FORUMS OR ON APNEABOARD.COM SHOULD NOT BE CONSIDERED AS MEDICAL ADVICE. ALWAYS SEEK THE ADVICE OF A PHYSICIAN BEFORE SEEKING TREATMENT FOR MEDICAL CONDITIONS, INCLUDING SLEEP APNEA. INFORMATION POSTED ON THE APNEA BOARD WEB SITE AND FORUMS ARE PERSONAL OPINION ONLY AND NOT NECESSARILY A STATEMENT OF FACT.


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#3
RE: Undiagnosed CSA since 9 years old
(09-12-2023, 10:08 PM)SuperSleeper Wrote: Unknowable unless you're just such a person.  I suspect such a person would have a lot of health issues.

If it's you, why not tell us what life is like for you?  Or is this some sort of trick question??   Bigwink

Just wondering what your getting at...   Thinking-about

Yes, it’s my belief that I’ve had CSA based on symptoms in children, symptoms as adults, most of my life I’ve had many episodes of gasping for air after waking up, been witnessed by ex over 13 years ago that she would get frightened that I wasn’t breathing often when sleeping.
I have complained about various symptoms since being 9 yo. Had 2 MRIs of my brain over years because of severe headaches.
Also, at around 25yo, diagnosed with mild sleep apnea. The sleep lab told me to take a night job because my body sleeps better during the day.
Didn’t know CSA existed until about two week ago and I cried when I read the symptoms.
Have not been officially diagnosed with CSA so I wanted to see what some more informed people may say so I can gauge the symptoms.

It’s been hell. Always feeling like something’s wrong but no doctor or hospital ever figured it out. Brain fog almost my whole life. Tired all of time no matter how many hours slept. Often got “not working up to potential” on report cards, always accused of being lazy, almost seem to have a little autism and ADHD (lol, not the hyper part at all), I’m the guy that can suck the life out of conversation because lack of energy, hard time keeping friends, memory issues, depression, suicidal thoughts, bad temper some times, trouble with working memory, high blood pressure, horrible night sweats (some times I can slap the bed and it almost makes a splashing sound…need to change all sheets, towel myself off, change clothes), stomach issues/GERD, falling asleep driving,…

Nearly died from covid. Went into the hospital December of 2021. Got out two months later. Covid pneumonia, A-fib,  Still have many issue including still being on oxygen. Last weekend I watched my SpO2 briefly go down to 74 with laying down.

My father and 2 brothers have OSA. Got an old CPAP and started using it. The very first night felt like I slept for the first time in my life. The nose pillow had a tendency to block one of my nostrils. I switched to a different nose pillow two days ago. When I woke up, I felt amazing. Most refreshed feeling…I had only gone to bed 3 hours before. Couldn’t get to sleep last night for hours. Woke up 40 minutes after going to bed, couldn’t sleep for a bit, then dosed for a few, now awake.

I feel like most of my life has been wasted suffocating at night and sleepwalking all day.
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#4
RE: Undiagnosed CSA since 9 years old
It would make sense to discuss this with your doctor and get scheduled for a sleep polysomonograph to determine the presence and type of sleep disordered breathing. Effective therapy exists for any number of problems that might be causing your symptoms, including CSA if that is found. We can help guide you on therapy, but the first step is necessarily a diagnosis. No reason to continue living with a problem that has a solution. First step is up to you.
Sleeprider
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INFORMATION ON APNEA BOARD FORUMS OR ON APNEABOARD.COM SHOULD NOT BE CONSIDERED AS MEDICAL ADVICE. ALWAYS SEEK THE ADVICE OF A PHYSICIAN BEFORE SEEKING TREATMENT FOR MEDICAL CONDITIONS, INCLUDING SLEEP APNEA. INFORMATION POSTED ON THE APNEA BOARD WEB SITE AND FORUMS ARE PERSONAL OPINION ONLY AND NOT NECESSARILY A STATEMENT OF FACT.
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#5
RE: Undiagnosed CSA since 9 years old
I just woke up, never in my life have I felt like this! My eyes are clearer. Well, they were until I started crying. lol  Even when blinking, I can feel a difference, they are not as dry and irritated as usual. My eyeglass prescription changed three times (as if I had diabetes) within two weeks time to the bewilderment of the doctor. I bet that will be different now.
It also seems like I detect scents better. “My sniffer doesn’t snif,” is something that I would say often when I couldn’t smell things occasionally (long before Covid).
My life has been stolen from me
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