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[Treatment] Its been a year and a half, and I still feel like I am failing.
#1
Its been a year and a half, and I still feel like I am failing.
Hello everyone!

I have been following the board for just about a year, and you all have been a great resource to me since I have started this path in addressing my CSA. I'll Give you some of the highlights here before digging into the meat of my questions. I have always had some level of apnea throughout my life, it did not have a noticeable impact on my health until about 7 or so years ago. 2 years ago when I got engaged to my now lovely wife (a med/surgery nurse) she put her foot down and said, you have apneas and it's killing you. In my initial battery of sleep studies I had an AHI of 134 with a split of 81 CSA/ 24 OSA/ 29 mixed. My physician only wanted to use a CPAP at the time and left me on that machine for about 7 to 8 months, before finally agreeing with me that the therapy was not going to work and moved me to an ASV titration device. The ASV treatment was a complete failure until I took the apneaboard's advice to wear a soft cervical collar starting December 29, 2022, this was a miracle suggestion and convinced my doctor that an SCC is appropriate for CPAP users. 

After using the SCC my apneas dropped to an average AHI of 1 or for about 1.5 months, and in spite of that I was still experiencing sleep attacks. So my doctor proscribed me modafinil and started considering narcolepsy testing. Then illness' brutally took over my family for a month where my AHI started spiking, at this point my ResMed took a dive and spued its guts into my reservoir and I had about a month of no data while using a loaner machine while it got fixed. Since then my AHI's have only increased, I am still battling sleep attacks, I am still using my collar and have replaced mask/head gear and the likes to see if I can get things to improve. They have not. So, can I start a discussion on what I can do to improve all of this? Can I get pointers on how to interpret the data I have collected, and what are the actions I should consider taking from that data. I want to be empowered by this treatment, but I mostly feel lost and drained by it. Most of all, I am tired of taking stimulants to keep alert, and as an Electrician, I HATE HAVING SLEEP ATACKS IN LIVE PANELS! so lets start with some OSCAR data that we can begin asking better questions.

Here is a basic overview of the 10 months to get a scope of my ASV treatment found in 3 screen shots.            
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#2
RE: Its been a year and a half, and I still feel like I am failing.
here are the Granular reports of the ASV data the first is data during January when the AHI's where managed and the Cervical Collar was in use.

   

The next example is one of my better nights in the last few months at an AHI of 2.16.

   

this was on of the worst in the last 10 days at 26.7. My AHI has been steadily creeping up to an average of over 18 every night. 

   

I would love to understand what is going wrong here, and if there is more data i need to provide I would be happy to grab it.

~APLJACK
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