Dr. Dylan Petkus

[Newmexdex]

I signed up for his ebook for $7.  It turned out to be an ad to sign up for therapy sessions with him on line. The book contained no real Apnea medical advice, only his success stories.  I do not recccommend.

[rltarbu]

Sounds like he may have some relatives selling things too, 3 cousins Dewey Cheatum and Howe and his brother Takeu Foraride.

I also think yoga may help with CA and intend to explore that.  From what I understand CA can occur when you over breathe which causes your CO2 level in your blood to drop which causes you to stop breathing (CA) and then you start breathing again and the cycle continues.

[nomadwriter]

I actually just found him through youtube yesterday and went to the website he gave in that youtube video. 
On that site he DOES give several testimonial videos. So, if they weren't there when you looked at his site, they are now.
I found his informational videos on his site to be quite informative. He even shows you the research papers that are found on reputable medical sites that backup his claims.

I also cannot pay $10K for his program. And he cautions that you should not DIY it and explains why. However, I am going to try his Pause Control & Boxed Breathing exercises that he lays out in his video and see where that gets me. 

So, I would recommend that people watch the videos on his website. Knowledge is power.

[John70]

I appreciate the post from other members regarding Dr Petkus MD. YouTube videos. 
 
I was intrigued by Dr Petkus observation that to much inhaling causes a vacuum that closes the airway. He recommends 1. Slow inhaling. 2. Remove triggers (stress, missing nutrients, Bad Sleep Cycles & Enviromental factors) 3. Routines. 

Having read the other posts regarding the cost of the program $12K or $10K cash it isn't for me. However, I will watch his other videos. After 5 years using CPAP I continue to look at options. I probably will never stop looking at options to make therapy the best it can be. Slowing down my breathing is not an option I have tried.

Recently, I learned about Dr Noah K-pap therapy that may be available in 2025. 

Learning for me is empowerment that helps me manage my old age.

Thank you,  
John

[Modisx5]

Good comment about K-Pap. Did you try one of the V-Com devices? It sounds like a poor-man's K-Pap, and perhaps V-Com was also developed by the same Dr before he developed K-Pap. 

getvcom.com/wp-content/uploads/2023/03/1015-V-Com-White-Paper-Rev-2.0.pdf

[Per Laursen]

I have watched Dylans videos as well.

My thoughts are: Am I a victim of wishfull thinking? Is it just another false prophet, making money on “snake oil” treatments, that is as fake as much other videos on the net, but promoted by super skilled people. People who are educated in an university and specialized in psychology, that knows exactly how to trigger your brain in the sweet spot, to buy something or vote for a fraud. Hard to tell. 

To me its seems like its to good to be true….and then it often is. Like in politics, false promises are always exagerated. Getting rid of CPAP is such a claim. 

My conclusion:

I dont care if a medication, surgery, treatment or method works for many people. It all comes down to: will it work for me? 

So I will try the recommended breathing methods myself, and carefully monitor the nightly results, on my cpap and oxygen monitoring recorder.

If i get progress I will exchange results with others, that are doing the same here in this forum.

Maybe some of you have allredy been there and got better info? Feel free to write me: Guitarmanaros@gmail.com 

Per in Denmark. ???

[super7pilot]

I wonder if that blood pressure reduction breathing machine (resperate) that was FDA approved for OTC sales might be something applicable to apnea?

[John70]

It could help with sleep apnea. However the "gold standard" for treating sleep apnea is a CPAP Machine. I like others continue to try to improve my sleep apnea in various ways. The RESPeRate machine is not something I have tried. I do understand controlling blood pressure is important. Diet and exercise does it for me. Though breath work could be beneficial as well. Lowering your breathing rate as described in James Nestor's book does helps with sleep apnea. I have read the book but I haven't practiced any breath work. Dr Dylan Petkus recommend various breathing exercises as I understand though I am not familiar with his work. 
This subject is really motivating me to employ breathing exercise as recommend in James Nestor's book which I will read again. Today I watched his YouTube video convesation with Dr Mark Hyman his did a couple of years ago. Proper breathing is really a fascinating subject. You may find others on the forum who can help as well.

If you use the RESPeRate machine, lets us know how it is working for you.

Cheers, John 

[super7pilot]

It could help with sleep apnea. However the "gold standard" for treating sleep apnea is a CPAP Machine. I like others continue to try to improve my sleep apnea in various ways. The RESPeRate machine is not something I have tried. I do understand controlling blood pressure is important. Diet and exercise does it for me. Though breath work could be beneficial as well. Lowering your breathing rate as described in James Nestor's book does helps with sleep apnea. I have read the book but I haven't practiced any breath work. Dr Dylan Petkus recommend various breathing exercises as I understand though I am not familiar with his work. 
This subject is really motivating me to employ breathing exercise as recommend in James Nestor's book which I will read again. Today I watched his YouTube video convesation with Dr Mark Hyman his did a couple of years ago. Proper breathing is really a fascinating subject. You may find others on the forum who can help as well.

If you use the RESPeRate machine, lets us know how it is working for you.

Cheers, John 

I was thinking along the lines of how difficult it is for most new users of an OSA device to get used to trying to “breath normally” under the rather abnormal conditions presented in a c/apap machine.  

The timing/training feedback of the resperate seems intriguing.

[Per Laursen]

One thing I think is important about Dr. Petkus optimizing treatment, is his holistic view of our nightly breathing problems.

After having OSA in 25 years, it seem obvious to me, that apnea is not a simple problem with only one cause and one solution. Its much more like a vicious circle.

I have tried from my own experience, to pinpoint some of the many factors involved.

Apnea leads to abrupted sleeping patterns. So instead of restoration our system instead goes on overwork at night. Your brain is also prevented to do the regular nightly maintenance, so your cognitive functions will decline a bit, year by year. Sleeping patterns also affects our hormonal system. So you get tired and excausted, and many in a manner, that prevents them from experimenting with equipment, to get the most comfortable and effective treatment. That leads some to partially or complete drop the CPAP, which really makes apnea worse.
The imbalance of our hormonal systems also influence our overall metabolic function.
That leads to weightgain and inflammation. Inflammation in the hearts wessels leads to build up of plaque, wich is leading to higher bloodpresure. Its not only in the heart area that blowflow is affected. In the beginning reduced blodflow shows up, in the tiny wessel and affects the important organs below your navel, which your spurse might have observed. -This phenomena also affect men. The calcification also means a higher risk of having severe blod circulation problems in your heart, and then getting a stent and later a bypass graft. Then you will be offered a ton of different medications, with different sideeffects. 
Some claims, that they feel like being the cash cows of the medical industry. Some of the cemicals are affecting your brains normal respiratorial response, and on their own or in combination, lead to Central Sleep Apnea. Central Apnea makes your CPAP a bit inefficient as its algoritms are designed for OSA only.  CSA is very closely related to heart function, and I can tell that surgery on the heart, that works and allow better blowflow, reduces both Central and Obstructive apneas. So it goes both ways. Some doctors may call it a bidirectional relation, between the heart function and apnea. 

Its well documented that having sleep apnea for years, also leads to an increasing lack of uptake of several vitamins and minerals, wich also contribute to escalate health and sleep problems. Aging will also affect the metablism and mineral uptake in a negative way, so theres really something to go for there. 

My conclusion of all this, is that optimization must be on several fronts. CPAP is only one.

We are talking about a visious circle, and looking for only one reason, that solves everything wont work for anyone. That is my humble experience.

So Im experimenting with everything involved.

We all know a lot of things that instantly makes apnea worse. (smoking, alcohol, prescription drugs, bad sleep routines, alarm clocks, lack of exercising, lack of vitamins, being overweight…ect…)
We may then assume, that there might also be a number of things that could make it better. 

I was a bit overweight (only 20 pounds) and got rid of them, using intermittend fasting, which seems to be the only cure for normalizing bodyweight that really works for me. I my opinion, much easier to administer and less problematic, than to adopt to CPAP. 
That alone led to a significant reduction in both obstructive and central apneas.
I also tried nightly suplement of oxygen, which reduced the CSA burden significantly, and reduced blodpressure as well. That means that I could reduce the intake of medications as well, maintaining a low blod pressure. Actually I could then also reduce the Max. Pressure on the machine from 10.0 to 7.2 and  still maintaining the best AHI results. (Below 5) Less pressure is more comfortable, means less leaks, and my sleep isnt interupted by the high pressure or lekage anymore. Also swifted from APAP mode to CPAP, which reduced the Central apneas significantly.

 I hope some of you are inspired, and will work on optimizing as well. Treating apnea as good as possible, is to me the direct way to improve our quality of life. 

Im no doctor so please dont take my opinion as a medical advice…Anyway its just a thought. Per L.