Conclusion up front: I have pain every night and usually throughout the day - accompanied by a ton of burping - located in my mid-back and left front rib (And that generally aches around my side), bloating, and general discomfort. Assuming I have aerophagia, should I try a different mask?
Here's my history.
Used to smoke.
Diagnosed with OSA (severe) back in 2008. Sleep study showed AHI of 70-80.
Titration was painful - tons of reflux that night and the psa tech almost didn't get enough reading b/c I didn't sleep.
Started therapy w/ ResMed S9 at pressure 11 w/ nasal mask.
Asked a question about reflux/aerophagia on this board. Was recommended to turn off EPR (because at the time I was complaining about not liking the pulsation) and reduce the pressure. I did that. But the general discomfort issues persisted: reflux, burping, farting, etc.
2015 Went to GI - got on a prescription reflux med.
2018 Came to find out I have a pretty serious dairy intolerance.
Cut dairy out of my diet and various symptoms improved (e.g. less dry mouth, less hoarse voice, less throat pain = less reflux).
That then made me realize I could stop my reflux medication.
With respect to CPAP, felt that the pressure was too strong. Advised by sleep doctor to try a different mask, try reducing pressure, and got a new S10 Autoset. He would not order new sleep study. Advised to put the machine on auto.
2019-Present - using nasal pillows, have the machine on auto (low of 4.0 or 5.0 and high of 12.0). Generally was doing pretty good. OSCAR shows AHIs consistently less than 5, some nights less than 1. BUT. wasn't feeling great. My complaint has always been "my insides hurt."
Present:
2020 - for some reason began to really have a ton of pain.
Started taking reflux medication again. Doesn't help at all. And when I was taking it before it never really did either.
My symptoms now - and the point of this thread - I wake up within 1-2 hours of going to sleep in really severe pain - I sit up and burp and burp and burp and burp - rip my mask off throw it on the floor - curse the world, etc. This pain starts almost immediately upon putting the mask on - within minutes. Goes away in about 15-20 minutes of taking it off.
Dec 2020 - got new sleep Dr. at UTSW. New sleep study. AHI of 28.7
In Jan 2021 - Dr advised to try sleeping without your CPAP. I did that for several nights Dec 6-7, 9-11.
First morning of first night - I shot out of bed and felt that life was worth living again. I was so excited. I wasn't tired and I had no pain.
Day 2 - I'm a little tired and I have that tense feeling in my body. I'm NOT bloated. I don't remember the last time my stomach was so flat.
Day 3 - used CPAP and liked it.
Day 5 - didn't use CPAP and was mildly tired
Day 6 - didn't use and was tired
Day 7 - went back to CPAP
For several months was feeling pretty good w/o much pain. But starting around March, I'm back to my pain.
Mar 2021 - saw GI doctor. Had endoscopy and imaging. All clear - no hernia, no pancreatitis, no ulcers, etc. He recommended a pain specialist. The point of going to the GI was to determine if I was having reflux or any GI issues and he sees no evidence of anything.
My theory:
I used to have dairy intolerance. That caused the reflux. That was the reason for the bad AHI at the study in 2007, and the past hoarseness, etc.
Presently my apnea is "moderate". And presently, I need to find a solution for AEROPHAGIA. The aerophagia is causing bloating that is pushing on my ribs and making my ribs/back hurt. Maybe also aerophagia is causing some reflux, but I don't feel heartburn, really.
Present sleep actions:
1) I sleep on a wonderful mattress and an adjustable bed and have the head raised.
2) I can sleep either flat on my back or on my side.
3) If I run the pressure low (4-7) and use pillows OR run the pressure low (4-7) and use nasal - OSCAR shows AHIs low. But I have pain.
4) If I run the pressure high (11-12) and use pillows OR run the pressure high (11-12) and use nasal - OSCAR shows AHIs of 10-20. I have worse pain.
My question: assuming I am trying to do the chin tuck, assuming I'm sleeping elevated, assuming I'm taking reflux medication - HOW DO I STOP THE AEROPHAGIA?
I'll try a different mask. Which mask tends to work best for helping with aerophagia?
Could I be a mouth breather? I do have dry mouth when I use NASAL at high pressure.
Next steps:
Talking with my sleep doctor - She wants to do a Titration w/ a Bi-Pap and see how I do because she agrees that I probably have aerophagia.