12-03-2023, 03:02 PM
(This post was last modified: 12-03-2023, 03:08 PM by Too Sleepy.
Edit Reason: Grammar mistake
)
RE: Extremely rapid breathing on bi-level (28 resp. rate)
Hi,
Quick update- I tried bi-level ST mode and while the TESCA was under control, the hyperventilation persisted.
From my research into central sleep apnea, there appears to be a hyperventilation-associated form of it. I believe it relates to something called "high loop gain". I appear to suffer from a very severe form of it. I hyperventilate for upwards of twenty minutes, 25+ breaths per minute, 1:1 inhalation to exhalation ratio.
ASV didn't work, bi-level ST didn't work. I also tried iVAPS which didn't prevent the hyperventilation either. I experimented with EERS but this also did not work despite many attempts to titrate with various tube lengths as well as pressure support. The hyperventilation did not cease. I believe I have very sensitive chemoreceptors and suffer from high loop gain. If I was able to attain a capnography device then maybe I could properly titrate the EERS with precise CO2 level monitoring. However, in the UK as a consumer this has proven an impossible task.
I have since given up on all forms of PAP therapy. I had multiple DISEs performed which identified the source of my airway obstruction. I know that this forum seems to not believe in surgery so I won't go into that too much. I'll just say that I ended up getting very lucky in that I seemed to have obstruction at solely one site, I had a soft tissue anomaly (grade 3 lingual tonsils) but otherwise very normal anatomy in my upper airway. I'm still swollen from surgery, but in a few weeks I will give an update. I'm very optimistic about the surgical outcome and hopefully will be one of the few (if only) posts to positively state that they've felt improvement and possibly seen a cure via surgery. Given that I have UARS and never suffered from full apneic obstructions, I think this makes resolution of my SDB much more likely.
In the future I'll also post screenshots of my EERS, ASV as well as iVAPS experiments, if anybody is interested.
Quick update- I tried bi-level ST mode and while the TESCA was under control, the hyperventilation persisted.
From my research into central sleep apnea, there appears to be a hyperventilation-associated form of it. I believe it relates to something called "high loop gain". I appear to suffer from a very severe form of it. I hyperventilate for upwards of twenty minutes, 25+ breaths per minute, 1:1 inhalation to exhalation ratio.
ASV didn't work, bi-level ST didn't work. I also tried iVAPS which didn't prevent the hyperventilation either. I experimented with EERS but this also did not work despite many attempts to titrate with various tube lengths as well as pressure support. The hyperventilation did not cease. I believe I have very sensitive chemoreceptors and suffer from high loop gain. If I was able to attain a capnography device then maybe I could properly titrate the EERS with precise CO2 level monitoring. However, in the UK as a consumer this has proven an impossible task.
I have since given up on all forms of PAP therapy. I had multiple DISEs performed which identified the source of my airway obstruction. I know that this forum seems to not believe in surgery so I won't go into that too much. I'll just say that I ended up getting very lucky in that I seemed to have obstruction at solely one site, I had a soft tissue anomaly (grade 3 lingual tonsils) but otherwise very normal anatomy in my upper airway. I'm still swollen from surgery, but in a few weeks I will give an update. I'm very optimistic about the surgical outcome and hopefully will be one of the few (if only) posts to positively state that they've felt improvement and possibly seen a cure via surgery. Given that I have UARS and never suffered from full apneic obstructions, I think this makes resolution of my SDB much more likely.
In the future I'll also post screenshots of my EERS, ASV as well as iVAPS experiments, if anybody is interested.
