I need help
I have had sleep issues since childhood and was finally diagnosed around 2004 but my RDI was 6 so I was not covered by insurance. My basic diagnosis was that I had a very narrow airway and woke up 50x with no stage 3 or 4 sleep.
Since then I was diagnosed with thyroid disease, I have lost 1/3 of my thyroid mass and have scar tissue that raised my pressure and I am also much less fit. I still woke up 50x in my recent sleep study and no stage 3 or 4 sleep but it takes a lot more pressure to fix my sleep and my RDI is 15.
It took 11 months of going to the dr every week crying and begging to get a cpap and finally having to go to a new medical group, the sleep dr said that was very hard on a person with heart and lung issues. I have mitral valve prolapse with regurgitation and asthma. I got my machine in Oct and life started getting good.
We got a new store new manager who started cutting back hours while promising they were going back to normal soon for months. I spent through a scholarship and ended up close to broke. I got a 2nd job and decided to live in my car to save money to finish school. I went to a charity lot where you sleep on private land, it is sort of like camping which I love. However, I was promised late night cpap accomodation at another area, I transferred but was locked out because my work hours were too late to get in, I ended up not using my cpap about a week. I quit the 2nd job -I was too tired to learn it, transferred back to the lot where I can use my cpap but I have to be there by 930pm, and told the first job the time I need to be out of work. Manager only scheduled me late once this week and threatened to fire me if I didn't show up. Tonight I was told I had to stay late, I asked them to put it in writing that they are unable to accomodate my disabiltiy and were making me stay. They told me to go home.
A week and a half ago I woke up with swollen feet and ankles and was diagnosed as organ failure. My blood tests did not show any problems but am going to see a cardiologist because I have mitral valve regurgitation that may have progressed.
Is sleep apnea a disability? Can I go on disability and until I can get a job where they don't need me late nights? Am I doing the right thing putting my health first? I really have a difficult time functioning without my cpap.
Why is everyone making this so hard?
Since then I was diagnosed with thyroid disease, I have lost 1/3 of my thyroid mass and have scar tissue that raised my pressure and I am also much less fit. I still woke up 50x in my recent sleep study and no stage 3 or 4 sleep but it takes a lot more pressure to fix my sleep and my RDI is 15.
It took 11 months of going to the dr every week crying and begging to get a cpap and finally having to go to a new medical group, the sleep dr said that was very hard on a person with heart and lung issues. I have mitral valve prolapse with regurgitation and asthma. I got my machine in Oct and life started getting good.
We got a new store new manager who started cutting back hours while promising they were going back to normal soon for months. I spent through a scholarship and ended up close to broke. I got a 2nd job and decided to live in my car to save money to finish school. I went to a charity lot where you sleep on private land, it is sort of like camping which I love. However, I was promised late night cpap accomodation at another area, I transferred but was locked out because my work hours were too late to get in, I ended up not using my cpap about a week. I quit the 2nd job -I was too tired to learn it, transferred back to the lot where I can use my cpap but I have to be there by 930pm, and told the first job the time I need to be out of work. Manager only scheduled me late once this week and threatened to fire me if I didn't show up. Tonight I was told I had to stay late, I asked them to put it in writing that they are unable to accomodate my disabiltiy and were making me stay. They told me to go home.
A week and a half ago I woke up with swollen feet and ankles and was diagnosed as organ failure. My blood tests did not show any problems but am going to see a cardiologist because I have mitral valve regurgitation that may have progressed.
Is sleep apnea a disability? Can I go on disability and until I can get a job where they don't need me late nights? Am I doing the right thing putting my health first? I really have a difficult time functioning without my cpap.
Why is everyone making this so hard?
