Sadly Doing it Alone!
Well greetings from Scotland!
Context. I've had horrible service from our NHS. Basically they cancelled several appointments and theres a wait list of over 7 months for a machine.
So, I decided to go it alone as my API was 42. I bought a ResMed 10, and I'm a month in. My GP does not have the knowledge and and sadly I will not see a sleep Dr until the 2nd reschedulled appointment they have given me in September, so I am trying to navigate this myself. I will have been on CPAP for 8 months alone. (I am a retired ICU nurse so I do have some understanding of ventilation etc) However ts diffrent when its yourself!
As such I would really appreciate your help and assistance around what I've learned so far and improving my settings. I'm a month in and
my issues are-
1. I think I have a floppy palate as my respiratory waveform indicates (see jpeg attachment) - my respiratory rate goes up to 50 because of this I think(chart B)
I've therefore put up my EPR is up to 3 (few CAs creeping in) I also raised my lower pressure to compensate.
2.My flow limitations are low but constant. What should I do about this??
3. I was getting on fine but in last week I started to have large leaks (nasal cushion) I'm going to try pillows but since I put my pressure up my nose broke down inside so I need that to heal first.
4. Anything else you see
Lesley
Context. I've had horrible service from our NHS. Basically they cancelled several appointments and theres a wait list of over 7 months for a machine.
So, I decided to go it alone as my API was 42. I bought a ResMed 10, and I'm a month in. My GP does not have the knowledge and and sadly I will not see a sleep Dr until the 2nd reschedulled appointment they have given me in September, so I am trying to navigate this myself. I will have been on CPAP for 8 months alone. (I am a retired ICU nurse so I do have some understanding of ventilation etc) However ts diffrent when its yourself!
As such I would really appreciate your help and assistance around what I've learned so far and improving my settings. I'm a month in and
my issues are-
1. I think I have a floppy palate as my respiratory waveform indicates (see jpeg attachment) - my respiratory rate goes up to 50 because of this I think(chart B)
I've therefore put up my EPR is up to 3 (few CAs creeping in) I also raised my lower pressure to compensate.
2.My flow limitations are low but constant. What should I do about this??
3. I was getting on fine but in last week I started to have large leaks (nasal cushion) I'm going to try pillows but since I put my pressure up my nose broke down inside so I need that to heal first.
4. Anything else you see
Lesley
