07-29-2023, 03:35 AM
Its been a year and a half, and I still feel like I am failing.
Hello everyone!
I have been following the board for just about a year, and you all have been a great resource to me since I have started this path in addressing my CSA. I'll Give you some of the highlights here before digging into the meat of my questions. I have always had some level of apnea throughout my life, it did not have a noticeable impact on my health until about 7 or so years ago. 2 years ago when I got engaged to my now lovely wife (a med/surgery nurse) she put her foot down and said, you have apneas and it's killing you. In my initial battery of sleep studies I had an AHI of 134 with a split of 81 CSA/ 24 OSA/ 29 mixed. My physician only wanted to use a CPAP at the time and left me on that machine for about 7 to 8 months, before finally agreeing with me that the therapy was not going to work and moved me to an ASV titration device. The ASV treatment was a complete failure until I took the apneaboard's advice to wear a soft cervical collar starting December 29, 2022, this was a miracle suggestion and convinced my doctor that an SCC is appropriate for CPAP users.
After using the SCC my apneas dropped to an average AHI of 1 or for about 1.5 months, and in spite of that I was still experiencing sleep attacks. So my doctor proscribed me modafinil and started considering narcolepsy testing. Then illness' brutally took over my family for a month where my AHI started spiking, at this point my ResMed took a dive and spued its guts into my reservoir and I had about a month of no data while using a loaner machine while it got fixed. Since then my AHI's have only increased, I am still battling sleep attacks, I am still using my collar and have replaced mask/head gear and the likes to see if I can get things to improve. They have not. So, can I start a discussion on what I can do to improve all of this? Can I get pointers on how to interpret the data I have collected, and what are the actions I should consider taking from that data. I want to be empowered by this treatment, but I mostly feel lost and drained by it. Most of all, I am tired of taking stimulants to keep alert, and as an Electrician, I HATE HAVING SLEEP ATACKS IN LIVE PANELS! so lets start with some OSCAR data that we can begin asking better questions.
Here is a basic overview of the 10 months to get a scope of my ASV treatment found in 3 screen shots.
I have been following the board for just about a year, and you all have been a great resource to me since I have started this path in addressing my CSA. I'll Give you some of the highlights here before digging into the meat of my questions. I have always had some level of apnea throughout my life, it did not have a noticeable impact on my health until about 7 or so years ago. 2 years ago when I got engaged to my now lovely wife (a med/surgery nurse) she put her foot down and said, you have apneas and it's killing you. In my initial battery of sleep studies I had an AHI of 134 with a split of 81 CSA/ 24 OSA/ 29 mixed. My physician only wanted to use a CPAP at the time and left me on that machine for about 7 to 8 months, before finally agreeing with me that the therapy was not going to work and moved me to an ASV titration device. The ASV treatment was a complete failure until I took the apneaboard's advice to wear a soft cervical collar starting December 29, 2022, this was a miracle suggestion and convinced my doctor that an SCC is appropriate for CPAP users.
After using the SCC my apneas dropped to an average AHI of 1 or for about 1.5 months, and in spite of that I was still experiencing sleep attacks. So my doctor proscribed me modafinil and started considering narcolepsy testing. Then illness' brutally took over my family for a month where my AHI started spiking, at this point my ResMed took a dive and spued its guts into my reservoir and I had about a month of no data while using a loaner machine while it got fixed. Since then my AHI's have only increased, I am still battling sleep attacks, I am still using my collar and have replaced mask/head gear and the likes to see if I can get things to improve. They have not. So, can I start a discussion on what I can do to improve all of this? Can I get pointers on how to interpret the data I have collected, and what are the actions I should consider taking from that data. I want to be empowered by this treatment, but I mostly feel lost and drained by it. Most of all, I am tired of taking stimulants to keep alert, and as an Electrician, I HATE HAVING SLEEP ATACKS IN LIVE PANELS! so lets start with some OSCAR data that we can begin asking better questions.
Here is a basic overview of the 10 months to get a scope of my ASV treatment found in 3 screen shots.
