You guys are the greatest! They hardly told me anything at all! I'll go to the next DME with some knowledge! This one won't answer but ONE question, tell me I have to come IN if more than that. I needed a piece replaced and Medicare even got on the phone WITH them and I heard them say it was covered. This is Medicare's rental period. But they sent me a letter and said I'd have to sign it before replacing the tiny clip ...said I'd have to pay for the WHOLE mask and said I'd have to sign saying I'd pay for it if Medicare didn't. NO WAY! They are on the other side or upper side of a sub-city and it's a 50 mile round trip. I cannot take her in each time I have a question (or more than one). I wrote to them....ok now I'm just venting because I'm upset. But this is what I wrote anyway if you need reading material :
You don't have to read it....but I need to write it! :
for all the information.
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I don't understand why I have to come in if I have more than one question. I have a few. I cannot make it to northern Westerville with her often enough to get my questions answered. Friday 12/29 is the only time I can bring her. If you can take time for an appointment, why can't we do this on the phone? Here are my questions.
I have a few problems with her cpap.
The heated hose near a connection has relaxed so it looks stretched out.
It says: Warning: If you are using a full face mask (a mask covering both your mouth and your nose), the mask must be equipped with a safety (entrainment) valve. *** where is hers? I don’t see this item on her machine.
I want the cpap to STOP when she takes off the mask because she forgets sometimes to hit stop to stop the cpap from running, the reservoir is running dry and your people said this is not good. You can’t run it dry.
The DreamStation "CPAP" base model does not collect efficacy or breath by breath flow rate data, and for this reason is called a "brick". The Pro and Auto models have good data collection. So why does she have a brick cpap? Everyone I’ve spoken to prefers the AUTO machines. Why doesn’t she have this type of machine?
I’ve been told we should be able to see blow hours. I can’t find it.
She doesn’t have PREHEAT as a setting that I can find. There are no settings for this.
Philips Respironics Deamstation Review / Tutorial Part 3 of 3
https://www.youtube.com/watch?v=0BhrJPDq_5s
This shows it being done. But Darla doesn’t have settings for this.
There are too many straps and Velcro pieces. This causes a lot of trouble. Can I sew the straps together that go over the crown of the head? Or do you have another type? When she gets up in the middle of the night, she can’t get the mask back on by herself. If a Velcro comes loose, she cannot attach it again. She is sedated at night making this a problem even more so. When I first came to you, none of the questions I now have were talked about; I didn't know better. I can't get answers I need.
Because I cannot get support on the phone, I believe I must change DMEs closer to home and to one that answers questions on the phone. I'm also disabled and traveling over 50 miles round trip is a problem.
Because there are so many clips and we have the Velcro problem (see above) we thought we'd lost it. (we found it after I called you). You (someone there) were on the phone with me and Medicare (who told you this was covered under Medicare) but you still sent a letter saying if Medicare didn't pay that I would have to pay for a whole new mask as I couldn't get the clip. The whole mask is costly and I won't pay for what Medicare told me it would pay for. I've never been asked to sign a paper like this from anyone before. This is upsetting.