I am interested in anyone's experience with Central Apnea and Complex Apnea. Has anyone developed Treatment Emergent Central Apnea since starting on CPAP treatment?
My in lab sleep test indicated a diagnosis of complex apnea. I had not used a CPAP machine before this diagnosis. The central apnea was present from the first sleep study. I have a theory about why I have Central Apnea that is related to a 5 day period when I was intubated while I was in ICU following a serious motorcycle crash. I was fully conscious during the 5 days I was intubated. (that was a terrible experience)
I have had nothing but frustration since I started using a CPAP in August 2023. I started with the AirCurve 10 Air Sense and transitioned to the AirCurve 10 ASV on the advice of the ResMed tech based on my history with the 1st machine and my diagnosis. I have tried 4 different masks. I use the Philips DreamWare Full Face Mask with mixed results. I think the main issue for me is the CPAP settings - not the mask.
I have a high OSA score with 35-45 events per hour. I was also diagnosed with Central Apnea. The treatment for Complex apnea has been unsuccessful. Recently I had COVID and could not use the CPAP at all for about 3 weeks. I just started using it about 4 days ago. I have not been able to tolerate the device and cannot fall alseep while wearing the mask. After 30 minutes of trying to breath "calmly" I have to stop. I am having the sensation of hyperventilation when the pressure suddenly increases. I think when I have a central apnea event he machine the pressure gets so high that I have to fight the machine to exhale.
It's really awful and my doctor insists I use the prescribed settings for 3 weeks so he can evaluate the data and change the settings. He says I still having too many events. I am almost to the point of giving up. The insurance company is waiting for my doctor to report on my progress. If I don't show improvement the insurance company will stop paying for the machine rental.
I welcome any feedback.
Thanks