Yesterday, 05:02 PM
(This post was last modified: Yesterday, 05:04 PM by jdip.)
Alaxo 6" Stent - Treating Soft Palate Obstruction
I made this thread to post my experiences with the 6” Alaxo Soft Palate Stent, in the hope that it can help others.
I have issues with my soft palate obstructing during sleep which CPAP/BiPAP do not resolve (the issue can actually be exacerbated with higher PS or EPR). This issue results in sleep never being refreshing/restorative which in turn leads to chronic fatigue and brain fog. I've been wanting to try the Alaxo soft palate stent for quite a while now to try and get improved sleep. I finally got my hands on one yesterday. I'd like to thank fellow Apnea Board member G. Szabo for helping me get a stent when I could not from Alaxo USA.
On the topic of Alaxo USA, I need to state that I had an awful experience dealing with them. They are incredibly unprofessional - once they have your money, they are not serious about shipping out orders and they don’t give any updates or provide any explanations. They ghosted me for months on all fronts – I could not speak to anyone or get a response by telephone, email, nor Facebook (my Facebook messages were marked seen, so I knew they saw them and chose to ignore them). At the 3-month mark (I was told it would take 2 weeks before ordering), I’d had enough of their radio silence and filed a chargeback/dispute with my credit card company in order to get my money back. I have seen similar complaints about Alaxo USA on YouTube and Reddit comments, so I am not the only one that has had a negative experience with them. It is clear that they do not care at all about their customers.
With that said, I will document my experiences with the stent.
Day 1:
My first session to try deploy the stent took a good half hour or so. There was a lot of eye watering, mucous dripping, sneezing, and gagging involved. It was all around very unpleasant. I was able to get the introductory tube deep enough but the moment I started retracting it, the stent would expand and hurt. It was extremely uncomfortable, especially when swallowing, so I had to quickly resheath it to avoid more pain. Following this session, I took a break for a couple of hours.
After my break, I attempted to deploy the stent once more and progress was made! It was still very uncomfortable and a bit painful to swallow or talk, but I was actually able to fully deploy the stent for a few minutes. It seems like it takes some people at least several weeks to get to this point, so I'm happy I was able to do it on the first day.
RE: Alaxo 6" Stent - Treating Soft Palate Obstruction
Day 2:
At the end of Day 1, my soft palate was feeling a bit raw/sore after the first 2 sessions of trying to use the stent. However, after a night of sleep (I was not ready to try to sleep with the stent yet), my soft palate felt OK again. Therefore, I was able to try to deploy the stent again today.
I made a breakthrough today and was able to fully deploy the stent. I have been wearing it for 2.5 hours now and have been able to tolerate it without much issue. It is mostly uncomfortable when speaking, where it feels very scratchy and a bit painful behind the soft palate. Speaking also makes it feel like my gag reflex is about to be triggered, so I have avoided it. There has been a massive improvement when swallowing. I could not tolerate swallowing at all yesterday with the stent deployed (it would result in severe scratchiness and pain) but I can tolerate it today. I can feel the stent there when swallowing but it no longer hurts.
The most important update: I can feel that the stent is working in keeping my soft palate from obstructing! I am ecstatic about this, as it is what I was hoping for from the stent.
I am not sure if I'm comfortable enough with the stent to attempt sleeping with it but I will let you guys know how it goes when I do try it.
Today, 02:52 AM
(This post was last modified: Today, 02:54 AM by THEVGE. Edited 1 time in total.)
RE: Alaxo 6" Stent - Treating Soft Palate Obstruction
Thanks for sharing your experience and all the best with your journey! Hope it helps for you. I recently figured out I have the same issue, and I will try Velumount brace first but nasal stents are option number 2. Following!
RE: Alaxo 6" Stent - Treating Soft Palate Obstruction
@jdip.
Thanks for your thread.
Hope you are doing better.
Your info. about CPAP and higher pressures and EPR causing more issues resonates with me.
I have palatal prolapse.
I thought i was having good results with higher pressures lately, and the prolapse suddenly flared up.
No idea really why, probably been happening for a long time.
EPR had been hit and miss as well.
Your comments will help me navigate the CPAP 'trials' that we need to constantly do, looking for that perfect recipe!
Though i cant even imagine i would try the stent.
Good Luck to you and all the others with your issues.
And thanx G. Szabo for all your help on this site as well!
RE: Alaxo 6" Stent - Treating Soft Palate Obstruction
@THEVGE thank you for your comment and well wishes. The Velumount is also on my radar but it is harder for me to obtain as I would have to travel to Europe to purchase one and have it fitted. I see that you are in the Netherlands so you don't have that problem and can get it locally. Are you planning on trying it soon?
@SeePak thank you for your comment and well wishes. From what you said, does that mean that you use 0 EPR or PS? I have found that when my soft palate obstruction is really acting up (jolting me awake every time I drift off to sleep), I find it helps to turn off EPR or PS completely.
RE: Alaxo 6" Stent - Treating Soft Palate Obstruction
Very interesting and thank you for describing your experience with the Alaxostent! I too have palatal prolapse and have had to increase my bilevel machine to 19/13 to keep my airway from getting blocked.
So, how in the world do you get that thing out without it scraping up the inside of your air passages?? It must not be as rough as I'm imagining it. LOL
2 hours ago
(This post was last modified: 1 hour ago by jdip. Edited 1 time in total.)
RE: Alaxo 6" Stent - Treating Soft Palate Obstruction
Day 2, Night 1:
I ended up attempting to sleep with the stent deployed and I was able to tolerate it the whole night. Even though I didn't have any discomfort or pain, I could feel the stent and it was causing saliva production, making me have to swallow periodically. This made it very difficult to fall asleep, taking about 4 hours to do so. However, I was able to finally fall asleep after those ~4 hours for around 6 hours. It was not very solid sleep, I woke up several times and wasn't able to get as much sleep as I would have liked. Even though I had the stent in for 10+ hours, I did not have pain, even when it was time to remove the stent after getting out of bed.
I used my BiPAP machine as usual without too much trouble. The "tail" of the stent that is taped to the cheek presented a small challenge with my mask (Resmed Airfit F40 Full Face Mask), but at the right angle and with some trial and error adjustments, I was able to eliminate the leak it caused with my mask.
I was eager to see my CPAP data for the night in OSCAR. Unfortunately, it seems that soft palate obstructions are still occurring which leads me to believe that the stent is not rigid enough to eliminate the obstructions from happening. However, it may still be having a positive effect, if the obstructions are shorter and/or happening less often. I do not know if this is the case or not and will have to sleep more nights with the stent to get a larger sample size and to determine whether I feel my sleep has improved or not.
WARNING:
If anyone is new to using this 6" stent, it is extremely important to always hold the tip of the stent (if it is not taped down) when swallowing/coughing/sneezing. After wearing the stent yesterday during the day, I removed the piece of tape anchoring the stent to my cheek. After doing that, I had to swallow and did so without holding the stent. This made the stent (which was coated in mucus and hence very slippery) begin to slide down my throat. The tip of the stent with the metal ball went into my nostril and I was barely able to grab it in time before it would have disappeared into my sinus cavity. It was a big scare and something I will make sure never happens again. To anyone else trying/using this stent, please be careful!
RE: Alaxo 6" Stent - Treating Soft Palate Obstruction
@HarleyGirl63 Thanks for your comment. After the stent has been deployed for a while, it will get coated in slippery mucus and it slides right out without much fuss. That was my experience at least, YMMV. If you try to remove the stent after it has just been deployed, it will be dry and abrasive - I imagine trying to remove it when it is dry like that must not be a pleasant experience.
RE: Alaxo 6" Stent - Treating Soft Palate Obstruction
(2 hours ago)jdip Wrote: The tip of the stent with the metal ball went into my nostril and I was barely able to grab it in time before it would have disappeared into my sinus cavity. It was a big scare and something I will make sure never happens again. To anyone else trying/using this stent, please be careful! I had a similar scary incident, which I reported here:
https://www.apneaboard.com/forums/Thread-Alaxo-Hybrid-Stent-with-CPAP-Therapy-Thread?pid=533981#pid533981
I suggested a safety improvement here:
Homemade improvement of the Alaxo Hybrid Stent, i.e., the 5" long.
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