Cheyne Stokes-How to verify?

[SeePak]

He also is not sure that Oscar is legit and wants some evidence I almost forgot about this
I told him it just reports what comes from the ResMed machine and tried to get him to look back into history but I don't think he wanted to find these days with the high events I'm going to send him Oscar screenshots pictures now and talk to my physician

Btw does Oscar just report cheyne
Stokes respiration events from the ResMed or does it assume that somehow with its software?
Also I want to mention that I've been getting a lot of positional type data on my charts and it can be OA it can be UA or can be ca it's really weird and some of it looks like the sheen Stokes as well so hard to know what the heck is going on really

[Jay51]

Therein lies the problem with CSR reporting.  It is based on interpretation.  OSCAR only reports what the machine sends to it.  Resmed machines has the CSR feature, but the majority (maybe vast majority of time) from charts that I have personally seen here posted at ApneaBoard that show CSR are actually only periodic breathing.  Philips machines would report everything as periodic breathing only (didn't try to interpret CSR).  

I had a WatchPat home sleep study that showed I had CSR.  My polysomnography showed no CSR.  I have an S9 adapt ASV with OSCAR's that show no CSR.  It is all in the interpretation (and I am going by my polysomnography and OSCAR with my ASV as correct).  


Here is some more reading from our wiki on it.  It explains CSR in greater detail.  May help you when talking to Dr. 

• Cheyne-Stokes respiration
  

[SeePak]

Thanks Jay yes I've read that section in Wiki a few times and no matter what I do it's inconclusive and it seems to be that way for everybody else that sees the chart too I guess eh?
And like I said in my original post for this thread if it's not CSR what is it cuz I don't want to do it anymore LOL and also I am doing breathing exercises to help get used to having the feeling of CO2 buildup or air hunger which I'm assuming will help me get rid of these. Periods of funky breathing and also I'm going to look at whether or not these exercises encourage some of this periodic breathing although I really do doubt that since I've had this for years way before I was doing any breathing exercises

[Jay51]

I hope the breathing exercises help you SeePak.  Please continue to update.

[SeePak]

Yes Jay I will update and continue exercises as well I have a few more threads that I have in mind one of them will be titled 

"try something you know won't work!"

" and what does Oscar charts look like for someone who does not have sleep apnea?"

I did testing for both above I'm sure there's going to be a lot of people with ideas about these
 thanks again you guys please feel free to chime in if you got something to add....

[SeePak]

Pulse oximeter update.

My minute to minute readings for Oxygen % have come back to what i had expected...
98 or 99 % without exercising, just spot checks.

And what i think did it was some light and strong breath holds a la Patrick McKeown.


Also, my regular flow rate chart has no signs of the waxing/waning that is either the periodic or Cheyne Stokes signature, until i have some kind of arousal due to whatever, then it starts for a bit and stops.

Not sure if that helps pin down what my overall diagnosis of this is?

I suspect it is CO2 intolerance and i am working on that with breathing exercises.....

[Gideon]

Late to the table.
OSCAR will report events, CSR included, as the manufacturer reports them. We do not want to change what the machine reports.

It is extremely rare that we see a actual case of CSR. IMHO resmed should be reporting CSR as periodic breathing. That would eliminate much anxiety from users who see CSR displayed. It is extremely unlikely, not impossible, for you to catch CSR on OSCAR without your doctor seeing abnormalities during routine physical.

That said why is it? I'm seeing "clusters" of obstructive events which implies an entirely different cause. What is your pillow situation? Using two vs one? You are likely tucking your chin which often results in those clusters .
Try using one vs two pillows, or a flatter less firm pillow. I'd also try a soft cervical collar, fit to prevent your chin from tucking, not to keep your neck immobilized.

Please try the above and repost your charts.

[SeePak]

Thanks for reply Gideon definitely feels good knowing it's a rarity and I'm pretty much intent to prove that's what it is which is why the other half of my question was well then what is it?

I use a neck collar as determined here on the board.
I just began investigating positional clusters that were creeping up and without them I'd have pretty decent charts. This is long been a tendency of mine and looks like it's with or without the neck collar so I'm going to try something else there.

I have never used more than one pillow and the one I'm using right now is a feather type which is not springy at all and I made this switch in light of the recent positional clusters

 I also use mouth tape as suggested on the board though I'm now using myotape.
I can and will post more charts but I do have a lot of information already from historical on Oscar for the last two years.

[SeePak]

   

Gideon, Jay and others.

I am wondering, is there a chance that these are NOT Positional, and instead a CO2 intolerance type feedback loop, with mis identification of the events?

I have been getting lots of these scenarios.

I know positional is suspect, and i had been using a collar when i was getting some of these, so like i said, i ordered a new taller one, and stopped using the Caldera Relief.

Also, last 2 days i have had the infamous 'campfire burning' smell and 1st day only made it 45 min, and last night 3 hrs before stopping CPAP.

I am getting concerned about the smell, as others are.

So i have stopped therapy until next week.

I felt great all day today, so the charts do not bear out what i feel, so that is good. Still going strong tonite too!

Also, pulse/oximeter oxygen readings back to normal, i get 98/99 more often again.

[Jay51]

There is a huge positional cluster of OA's (light blue bars) in the 1st large section of solid green bars (CSR).  This is most likely positional.  

Gideon made a great point that almost 100% of the time, there is some heart issue occurring with true CSR (opioid use can cause it though and a few other things).  

What has your Cardiologist said about all of this?