(07-10-2021, 02:03 PM)jprestonian Wrote: * No obvious way to access the clinician's menu.
-Jeff
Interesting.
As I told the NP at the sleep clinic last month,
I will not go to sleep with a machine attached to me that I do not have control over.
Period.
Hard no.
The whole world has just gone through 16 months of various lockdowns, and to a certain extent medical facilities -- and DME offices are medical facilities -- are still under partial lockdown. This is a
home medical device, and it needs to operate
at home. All the time. No matter what circumstances have cut my
home off from various medical professionals.
At my DME, my friend was the third of the 3 staff members to come down with covid. The Friday morning she realized that she had it, both of her coworkers were still home in quarantine, with the first due back the following Monday. She locked the front door and put up a sign, and did essential business through the drive-thru for the rest of the day.
Where I live, phones and internet have gone down for long periods of time. (People don't know this, but a lot of the internet fiber backbone -- especially going through remote areas -- is going over "lost fiber". When the first wave of fiber pioneers went bankrupt in the late 90's, their employees got laid off, and computers were auctioned off to pay creditors, and the records of the fiber they pulled got deleted. Yes, we know where the ends are, but between -- nobody knows. About 15 years ago they put in a new 4-lane across the county south of mine. It turned out that the main fiber backbone feeding our region took roughly the same route as the road. As they built the road, every couple of weeks they would cross the cable and cut it and knock a couple of counties off the internet and kill the landline phones for 2-3 days.) Look, the Silicon Valley jerks build technology as if they can't even imagine not being in continuous contact with high-speed internet and that there are never natural disasters or accidents. They are idiots.
With the covid virus, it turned out that cpap was a key effective treatment for people with the life-threatening serious form of the disease. People who were in quarantine because they were contagious. Those machines needed to have their settings adjusted to save the covid patient's life. Except, oops! the patient isn't allowed to change the settings. Ah, well, too bad...
I, personally, have my own problems with PTSD from a horrific encounter with a medical device and I simply do not trust any medical device. Period. A device that I have to trust is not going to hurt me
while I'm unconscious and the clinicians won't let me see and override what they have programmed it to do? Absolutely. Not. Happening. That's not informed consent, that's assault.
My 7 years of experience with Resmed is that they continuously
lie to me. Example: on May 20th I had a 46-minute period where my AirSense10 detected that I spent 20 of those 46 minutes in OA. Not breathing. My pulse-ox showed multiple desaturations. The machine sat there helplessly watching, pegged to 15 pressure, completely unable to do anything to stop this.
http://www.apneaboard.com/forums/attachm...?aid=32479
A few hours later the machine used the cell phone network to phone home and report the events of the night to it's masters.
It gave itself a MyAir score of 98.
http://www.apneaboard.com/forums/attachm...?aid=32480
I'm pretty sure that the various clinicians who got paid to "download and analyze" my data 4-1/2 weeks later had no idea that this incident happened. In other words, Resmed doesn't just lie to me, but to the clinicians who are charged with my care. (And are charging handsomely for it!) Without OSCAR, I never would have known that the reported "moderate" AHI of 7.9 was the smoothed-out average that included a 46-minute period (long enough to kill me!) where my AHI was 65.
Remember in
2001: A Space Odyssey when HAL killed the sleeping crew?
https://youtu.be/Z4n3dbPqk58
As we found out in the next movie, HAL did this because he was forced to lie "by people who find it easy to lie." In sleep medicine, we are surrounded by people who find it easy to lie.