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[Treatment] Apnea causing stroke/TIA, undertreated & gaslighted
#11
RE: Apnea causing stroke/TIA, undertreated & gaslighted
Okey! I'm just so relieved to have a nights sleep that didn't look dire (to me at least - and my hypopnea/hypoxia has been serious business) that I want to see another night or two before tweaking any pressures.

I know there's info on the board somewhere on sizing a cervical collar or pillow so I have to look for that. Since I got such a huge result from my travel pillow kludge I want to see if I can get a real one ASAP. Can't size one in person, you can't buy stuff except online.

So much gratitude here --- hoping this is the real fix!

I-love-Apnea-Board
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#12
RE: Apnea causing stroke/TIA, undertreated & gaslighted
Your graphs are a beautiful sight, no clutter, just the essentials visible.

Agree about clumps of flow limitation to watch.

Pretty good....
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#13
RE: Apnea causing stroke/TIA, undertreated & gaslighted
Reply to Coutherino -

What concerns me, scares me, about the resp rate, tidal volume, and the rest is the very real history of stroke and TIA during sleep. Apnea is a very strong contributor to cardio/cerebrovascular incidents. I have had one stroke for sure, many TIA's - the last ones may or may NOT have actually been transient! - due to combinations of blood pressure and apnea/hypnopea making me hypoxic.

Every single incident over 18 months has been while asleep. This is rather dire until proven otherwise, as far as I am concerned.


But the good news! Look at last night's graph -- ZERO events except the mask leak. That's fixable, and I have a different mask in mind. 

This is using my kludgy travel pillow so now I need a real solution to that. I know I was back sleeping, I woke up that way.

Once again Thanks Thanks Thanks


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#14
RE: Apnea causing stroke/TIA, undertreated & gaslighted
Third night in a row. Zero! apnea. 2 small centrals. I have more work to do but you guys nailed it for me. I'm sending a donation now.
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#15
RE: Apnea causing stroke/TIA, undertreated & gaslighted
Congrats on your win
INFORMATION ON APNEA BOARD FORUMS OR ON APNEABOARD.COM SHOULD NOT BE CONSIDERED MEDICAL ADVICE. ALWAYS SEEK THE ADVICE OF A PHYSICIAN BEFORE SEEKING TREATMENT FOR MEDICAL CONDITIONS, INCLUDING SLEEP APNEA. INFORMATION POSTED ON THE APNEA BOARD WEBSITE AND FORUMS ARE PERSONAL OPINION ONLY AND NOT NECESSARILY A STATEMENT OF FACT.
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#16
RE: Apnea causing stroke/TIA, undertreated & gaslighted
Thank you, though I didn't do anything! You all did the heavy lifting.
I'll do my best to spread the word, and help others.
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#17
RE: Apnea causing stroke/TIA, undertreated & gaslighted
Quick update: With the kludgy travel pillow neck brace to prevent the positional (chin-tuck) apnea I was still getting a couple of O2 drops to 88-ish per night. 

I switched to a CVS cervical collar 2 nights ago, had one night with no O2 drop, last night had one down to 91, but more apneas (AHI 1.0 up from approx 0.5)

I expect the collar to be a trial and error exercise.

Does it make sense to tweak levels while I'm looking for the right collar, or do one step at a time?


--- side note:


It may not be an exaggeration to say this board saved my life. With my stroke history and interaction between apnea and BP levels, it's very likely I would have suffered a major incident because of nightly hypoxemia. 

If there are any MD's on the board I'd sure like to get some insight into why 4 major medical centers didn't look for this and catch it.

I notice there are no Wiki articles on the implications of apnea for stroke survivors - nor how the simplistic AHI does them a disservice. If there's interest I'd like to contribute some of what I've learned over this last horrible 18 months! Including new information on replacing AHI with something more useful.

THANK YOU again.


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