[Treatment] I feel horrible

[storywizard]

In April I went back on CPAP, this was the result...

[img][/img]

Some folks suggested I try an ASV....it was wonderful.
My respirologist suggested I stay on it even though no doctor has prescribed it for me...

I have been on an ASV machine 3 months, felt OK...still not sleeping deeply but having some good days..
Thought I should heed some folks advice and go back on at least a Bi level machine, and so I am on a months trial on an Auto BiPAP...

I will let the pictures tell the story: The ASV....

[img][/img]

Then a few nights on the BiPAP:



I am in a bad state, just managing to function, but this is not good...not sure what to do..

Storywizard

[kaiasgram]

Hi storywizard, those pictures certainly do tell the story. I don't know the history behind the decision to switch to auto bilevel and you may not feel up to explaining -- I can probably find it by going back through older threads.

I'm really sorry about how you feel.

[DariaVader]

can you get the ASV back?

[storywizard]

can you get the ASV back?

Oh yes, its mine I got it from Supplier #2...great machine...

I only am trying the BiPAP because some more experienced
folks thought I should not be on ASV, as no doctor had prescibed it, but clearly I have issues that BiPAP cannot deal with...ya think! lol

I am not sure what to trust, the machine data, or the data from titration which showed few CA's...or how I feel...

Storywizard

[AlanE]

I'd go with how you feel. That BiPAP looks like a hot mess.

[kaiasgram]

I only am trying the BiPAP because some more experienced
folks thought I should not be on ASV, as no doctor had prescibed it, but clearly I have issues that BiPAP cannot deal with...ya think! lol

I am not sure what to trust, the machine data, or the data from titration which showed few CA's...or how I feel...

storywizard, did the folks who thought you should not be on ASV have a basis (like data or your health history) for thinking that, or was it only the fact that a doctor hadn't prescribed it?

[storywizard]

I'd go with how you feel. That BiPAP looks like a hot mess.

lol, and feels like a hot mess too..

Thanks Alan...

Storywizard

[storywizard]

I only am trying the BiPAP because some more experienced
folks thought I should not be on ASV, as no doctor had prescibed it, but clearly I have issues that BiPAP cannot deal with...ya think! lol

I am not sure what to trust, the machine data, or the data from titration which showed few CA's...or how I feel...

storywizard, did the folks who thought you should not be on ASV have a basis (like data or your health history) for thinking that, or was it only the fact that a doctor hadn't prescribed it?

It was because I had not had a prescription from a doctor...my sleep doctors don't know what to do with me...
The respirologist was very supportive of my ASV use, when I told her how much better it made me feel...so I am thinking I will follow her guidance...see if she will write a prescription. My GP will too, They are both on my side, which the sleep docs are not...they totally deny I am having any issues other than OSA...

Storywizard

[kaiasgram]

I'm glad you have a couple of providers you can rely on to listen and support you. Counts for so much.

And don't forget to trust yourself -- you were on the right path with the ASV.

[trish6hundred]

Hi storywizard,
I'm sorry you are having such a rough time of it.
It's great to hear that you have at least 2 doctors on your side..
If you felt better on the ASV machine, use it and get a prescription for it. I know you're on a trial right now though, but you might tell the doctor who has got you on this trial, just how badly you feel.
Good luck to you storywizard, hang in there for more suggestions.