09-02-2021, 09:46 AM
RE: AB friends -- help me fire my sleep doc?
Ok, here's what I hit "send" on last night:
Here's the 3 supporting documents that I created. The third one is actually a fascinating study of me as flow-limit queen, and how the vauto just fixes the problem while the autoset messes around impotently.
https://www.dropbox.com/s/rj00uvnurs6bwb...4.pdf?dl=0
https://www.dropbox.com/s/awb9vwz6p51l8q...8.pdf?dl=0
https://www.dropbox.com/s/jopv3af7fgbo04...2.pdf?dl=0
(I'm still pretty aggravated that ResMed has, in the Autoset hardware, this incredibly effective device for treating UARS. And they have, in their software library, the software -- already fully tested and deployed with all of the development costs spent -- that can run on the autoset hardware and treat those of us with severe flow limitation problems. All they would need to do is to have a mode -- put it on the menu as a 4th choice after {CPAP, Autoset, For Her} -- which has all of the triggers, timing, responsiveness, etc, of the vauto defaults. Then extend EPR a bit -- make it settable to 4 or 5. When you are done, all of the capability that most of us Flow limit sufferers would need from the vauto would be in the base model.)
Quote:I would like to make some updates and clarifications to my chart.
1) Since July 6th I have been using a AirCurve VAUTO bipap, and it is significantly better at treating my sleep-disordered breathing, at significantly lower pressures than the Autoset. I have virtually no flow limitations while using it, and it stops the positional apnea “storms” that the Autoset has little effect on. The responsiveness of the pressure support is more comfortable to use. I have been experiencing less daytime drowsiness and headaches, and fewer nighttime awakenings. Since I’ve had my Airsense10 Autoset machine since October, 2014, and it has almost 18,000 hours on it, it needs to be replaced. I would like for you to prescribe a ResMed AirCurve Vauto for me as the replacement.
2) In my March consultation, you noted “CNS hypersomnia unlikely.” In fact I have 2 first-degree relatives and 2 second-degree relatives with varying levels of hypersomnia, and I have many of the same symptoms as they do. If hypersomnia is relevant to the treatment of my sleep-disordered breathing, I would like to be evaluated for it.
The serial # for the vauto is []. I believe that you can get the detailed data from ResMed using the serial number.
I also have attached 3 PDF documents focusing on data from several nights which illustrate how much better the vauto is at limiting flow limitations, events, and constant arousals that the Autoset does not completely treat.
Here's the 3 supporting documents that I created. The third one is actually a fascinating study of me as flow-limit queen, and how the vauto just fixes the problem while the autoset messes around impotently.
https://www.dropbox.com/s/rj00uvnurs6bwb...4.pdf?dl=0
https://www.dropbox.com/s/awb9vwz6p51l8q...8.pdf?dl=0
https://www.dropbox.com/s/jopv3af7fgbo04...2.pdf?dl=0
(I'm still pretty aggravated that ResMed has, in the Autoset hardware, this incredibly effective device for treating UARS. And they have, in their software library, the software -- already fully tested and deployed with all of the development costs spent -- that can run on the autoset hardware and treat those of us with severe flow limitation problems. All they would need to do is to have a mode -- put it on the menu as a 4th choice after {CPAP, Autoset, For Her} -- which has all of the triggers, timing, responsiveness, etc, of the vauto defaults. Then extend EPR a bit -- make it settable to 4 or 5. When you are done, all of the capability that most of us Flow limit sufferers would need from the vauto would be in the base model.)
