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I quit using CPAP as a test. Here is what I found out...
#1
I quit using CPAP as a test. Here is what I found out...
I have been on CPAP (resmed airsense 11) for two months. I had mentioned to my primary doctor that I was having sleep difficulty and he suggested a sleep study. That took a while, but was OK with me because I did not think I had sleep apnea. Nine months later I was diagnosed with moderate sleep apnea. I have had a very difficult time with cpap. Tried many masks, many different settings and been recieving help from the great modertors on this site. I know I am supposed to be patient, but two months without a good nights sleep wore me down. So I did a search on ideaps for cpap useage on youtube. One of the videos that I found is a bit unorthodox but made a lot of sense to me. Of all places, a down to earth guy that runs the Essential Craftsman youtube channel decided to do a video on what he did as he quit cpap. The first video he did has over 1 million views and is his most popular video by far that he ever did. He also did a follow-up with some additional tweaks. He is a handyman so he figured out how to stop using cpap. 
So many of his suggestions I tried, and added a couple of my own. So here is what I did. 
When some of the experts on this site reviewed my Oscar data it was mentioned that I likely am dealing with positional apnea as the apneas are occuring in clusters. To solve this I made a committment to fully sleep on my sides and stop flopping to my back. I also added a soft cervial collar to help avoid chin tucking.
Next I taped my mouth, but not fully covering it, just enough to keep my lips closed and put a couple of slits in the tape just in case I needed it. I also used nasal strips to keep my nostrils as open as possible. I also purchased an O-2 ring to monitor my oxygen levels while sleeping. I also was tracking my sleep using my Apple watch.   I took my usual sleep aid and went to bed. 
Though not perfect , I had my best sleep in a while and did not feel like I woke up during an apnea gasping like I did prior to cpap. I believe sleeping on my side made the largest difference. My original sleep study I was on my back for several hours during the test. The 0-2 ring showed I had essentially the same oxygen levels (97%) as I had while using cpap and the sleep app was showing slightly improved results compared to my time on cpap.
Am I crazy for going down this road? and, should I continue trying, and then ask my sleep doctor if I can do another sleep study using my method?
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#2
RE: I quit using CPAP as a test. Here is what I found out...
You're not crazy.  Sleeping on your side, "fixing the nose," soft cervical collar, etc. can all contribute to easing apnea symptoms.  If you were moderate and mostly related to position, changing your position and testing the results is a common sense approach.  If you're sleeping better and your O2 levels are staying consistently high, it seems to me you're in good shape.  With the O2 ring, you can continue to track your O2 desaturations in OSCAR.  If you're getting ODI of more than 5 per hour, that's an indication that you might still have apnea events even if you're not aware of waking up.  Besides the concerns with sleep deprivation, their are consequences associated with intermittent hypoxemia induced by apnea events.  If you're not routinely plunging below 90 and you don't have ODI levels above 5, I'd keep doing what you're doing if you feel better.
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#3
RE: I quit using CPAP as a test. Here is what I found out...
Thanks for the input. Will keep going with this test as long as sleep and o2 levels are ok.
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#4
RE: I quit using CPAP as a test. Here is what I found out...
(08-29-2024, 01:32 PM)cdplatt Wrote:  If you're not routinely plunging below 90 and you don't have ODI levels above 5, 

Which ODI level are you referring to? Total? Or drops over 3% or 4%? For example, my SpO2 report from a few nights ago (NOT on CPAP) shows ODI 3%: 2.8/h, and ODI 4%: 0.7/h. But when I load the data to Oscar, it shows my total ODI as 27.62/h. 

I am in pretty much the same boat as rockyarbor. I have not used the CPAP for about 2 months, but my SpO2 data averages are nearly identical for those 2 months as they were for the previous 8 months I was on CPAP, and I feel MUCH better.


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#5
RE: I quit using CPAP as a test. Here is what I found out...
I am not sure how I get ODI levels either. I use the same o2 ring as the wellue and the ViHealth app.
I continue to sleep somewhat better than when using a cpap mask but wonder how many apneas I could be having and not know it. So tonight I am going to experiment by using cpap again and set the pressure low at 5 with no epr. I will sleep the exact same way, but have a mask on. Will be interesting to see how many apneas I am having doing this. If apneas are still what they were when I did my sleep study I may need to go back to using cpap again.
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