05-09-2018, 03:15 AM
(This post was last modified: 05-09-2018, 03:19 AM by sleeplover69.)
RE: Updates on Central Apneas
Wow, this thread may have saved my life and hopefully it will yet save many more. This gives me hope throughout all this darkness. I've moderate OSA at 15-18 AHI and I've been suffering from sleep maintenance insomnia/very fragmented sleep ever since being diagnosed and starting CPAP 3 years ago. I've multiple awakenings every single night, sometimes taking hours to go back to sleep. 3 years on and it's been absolute death for me, putting me on the absolute brink. I've never suffered so much in my life as I did these past few years.
I'm just so painfully and hopelessly exhausted everyday that I had to quit work and can barely function. I don't think I can even use the word "function" to describe it. I also have pretty severe ADHD and DSPD, both enormously amplified by the OSA. Nasally congested on one side after a septoplasty and two turbinate cauterizations so I still have to wear a full face mask for now. My numbers from my CPAP data are very similar to OP's and I was also prescribed 8 cm pressure from my sleep study. I've tried all kinds of different settings, but the awakenings persist. My centrals, while for the most part sub-threshold, have always been high, 2-4+, but it reaches 5+ like six times a month. My central apneas had always made up the largest percentage of my AHIs. I'd love to upload my sleepyhead reports here if that's not too hijacky? Or I'll start a new thread, which I think I should, anyway.
How did you folks convince your doctor to get an ASV study done and/or an Rx? With my extremely shifted sleep pattern, I don't know if I can even manage to get a sleep study done to get a prescription. I'm tempted to just cough up $4K CDN out of pocket like literally right now. I'm suffering so immensely I can't even stand to wait a few more months to a year to go through the proper motions to try to get it covered.
I found a few very interesting and promising papers/abstracts on google scholar about ASV regarding its treatment of insomnia related to sleep apnea. New poster rules so I can't link them, but they're by Barry Krakow et al. and you can easily find them on google:
"Adaptive Servo-Ventilation Therapy in a Case Series of Patients with Co-morbid Insomnia and Sleep Apnea"
"A Novel Therapy For Chronic Sleep-Onset Insomnia"
"ASV Vs CPAP RCT: Changes in Impairment in Complex Insomnia Disorder"
Also found some newer studies that contradict the study in 2015 associating ASV with worsened outcomes for people with heart failure.
Unfortunately, the last study I quoted was "supported by Resmed." But I wonder if the study could still be well designed. I don't know statistics, anyway. Is there mounting evidence for ASV being an effective solution where xPAP has failed for a good percentage of people with sleep apnea suffering from fragmented sleep? I am ready to take a chance. I don't think I have much to lose at this point.
I'm just so painfully and hopelessly exhausted everyday that I had to quit work and can barely function. I don't think I can even use the word "function" to describe it. I also have pretty severe ADHD and DSPD, both enormously amplified by the OSA. Nasally congested on one side after a septoplasty and two turbinate cauterizations so I still have to wear a full face mask for now. My numbers from my CPAP data are very similar to OP's and I was also prescribed 8 cm pressure from my sleep study. I've tried all kinds of different settings, but the awakenings persist. My centrals, while for the most part sub-threshold, have always been high, 2-4+, but it reaches 5+ like six times a month. My central apneas had always made up the largest percentage of my AHIs. I'd love to upload my sleepyhead reports here if that's not too hijacky? Or I'll start a new thread, which I think I should, anyway.
How did you folks convince your doctor to get an ASV study done and/or an Rx? With my extremely shifted sleep pattern, I don't know if I can even manage to get a sleep study done to get a prescription. I'm tempted to just cough up $4K CDN out of pocket like literally right now. I'm suffering so immensely I can't even stand to wait a few more months to a year to go through the proper motions to try to get it covered.
I found a few very interesting and promising papers/abstracts on google scholar about ASV regarding its treatment of insomnia related to sleep apnea. New poster rules so I can't link them, but they're by Barry Krakow et al. and you can easily find them on google:
"Adaptive Servo-Ventilation Therapy in a Case Series of Patients with Co-morbid Insomnia and Sleep Apnea"
"A Novel Therapy For Chronic Sleep-Onset Insomnia"
"ASV Vs CPAP RCT: Changes in Impairment in Complex Insomnia Disorder"
Also found some newer studies that contradict the study in 2015 associating ASV with worsened outcomes for people with heart failure.
Unfortunately, the last study I quoted was "supported by Resmed." But I wonder if the study could still be well designed. I don't know statistics, anyway. Is there mounting evidence for ASV being an effective solution where xPAP has failed for a good percentage of people with sleep apnea suffering from fragmented sleep? I am ready to take a chance. I don't think I have much to lose at this point.
