RE: Wife's CPAP Experience
Okay, like MS wasn’t worth mentioning until now? By any chance is there a copy of her diagnostic sleep test with personal information redacted?
05-20-2024, 04:01 PM
(This post was last modified: 05-20-2024, 04:03 PM by Jay51.)
RE: Wife's CPAP Experience
Thank you for those. My instructions were probably not that good either. Please try 2 more uploads like the last 2 you just posted, but start in the middle of the biggest purple cluster on both charts (so Central Apneas start the 3 minute zoom and end the 3 minute zoom - nothing but central apneas in these new uploads).
Your wife probably has a Neurologist if she has been diagnosed with MS. Neurologist would be the person to talk to about CSR. Showing Neurologist these same OSCAR charts with the CA's will give them more information to give either a positive or negative diagnosis of CSR.
The copy of her sleep study would be helpful like Sleeprider stated.
Download OSCAR
OSCAR Chart Organization
Attaching Files
Advisory Members serve as an "Advisory Committee" to help shape Apnea Board's rules & policies.
Membership in the Advisory Members group does not imply medical expertise or qualification for advising Sleep Apnea patients concerning their treatment.
RE: Wife's CPAP Experience
Sorry to be so short with last reply, but I was on the phone, and I have fat thumbs. MS makes a difference, and she probably qualifies for bilevel or ASV with that diagnosis. With ASV she has zero events and easy breathing. Things are definitely pointing that direction.
RE: Wife's CPAP Experience
05-20-2024, 06:00 PM
(This post was last modified: 05-20-2024, 06:01 PM by snpperhd.)
RE: Wife's CPAP Experience
No problem Sleeprider, I probably deserved to be hammered
RE: Wife's CPAP Experience
No intention to "hammer", but MS is often controlled with various opioid medications. While I don't know anything about her treatment, I do understand the disease and medications, and a significant risk factor is central apnea.
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5775511/ As I said, ASV is a common therapy to provide backup respiration for the central apnea in individuals with "controlled" MS, particularly if opioid medications are involved. ASV is a specific therapy for individuals being treated with opioids. Does that sound like it might be relevant? If it is, then let me help you get her on the correct therapy. CPAP does not treat opioid induced central apnea.
RE: Wife's CPAP Experience
I don't think so she's never been on opiods. Her MS treatment has essentially consisted of Betaseron in the beginning, then Avonex for 20+ years. They've kept her exacerbations to a minimum.
RE: Wife's CPAP Experience
Glad we can rule out the therapy, but we're still left with a lot of central apnea. You should obtain a detailed copy of her diagnostic sleep test and discuss her therapy with her doctor with the objective of scheduling a titration for CPAP, BiPAP, ASV with the objective of finding a therapy that actually works. Currently, her CPAP therapy has zero efficacy compared to her diagnostic.
RE: Wife's CPAP Experience
Her chart from last night seems pretty good. She adjusted her headgear a little and slept much better.