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02-22-2020, 01:01 AM (This post was last modified: 02-22-2020, 01:15 AM by ApneaQuestions.)
PSG Data from Sleep Study - EDF Formats
I had a sleep study in December and asked the sleep lab to provide me with the underlying PSG data.
The data is stored in "standard" EDF files (just like ResMed PAP machine data and data from various other devices).
This means that the data can be viewed with any generic EDF file viewer such as Polyman (in my sig).
Alternatively we can view the data using "Phillips Respironics Sleepware G3" software.
The Phillips software looks very much like OSCAR but has extra capabilities to annotate events and create reports etc.
I have not explored the capabilities of the software but I've attached a few screenshots to give a feel for it.
The images look cluttered because all possible data graphs are turned on and there isn't it enough screen space to make that useful.
There is a heck of a lot of data available but I wonder if anyone even looks at most of it when doing a "vanilla" sleep study.
I don't know if most sleep labs would be willing to supply this data. Nothing to lose... I just asked and they said yes.
Machine: ResMed AirCurve 10 VAuto Mask Type: Full face mask Mask Make & Model: Resmed Airfit F10 Humidifier: Comes with PAP CPAP Pressure: PS 4.4 over 9.6-15.2 CPAP Software: OSCAR
Other Comments: Trig=VeryHigh, Cyc=L, TiMin=0.7, TiMax=2.4
You could try EDFbrowser. The source code is hosted on EDFbrowser gitlab. I have used pyEDFLib (which uses EDFbrowser) to inspect EDF files. pyEDFLib is a python wrapper to EDFbrowser. pyEDFLib can be found on pyEDFLib download from PyPi. If you are so inclined, (or talented) you can nearly recreate all of OSCAR using pyEDFLib.
There's a learning curve on using EDF files, but I have to say they are quite effective containers for medical information. ResMed PAP machines also store data as an EDF. It would be really interesting to review PSG data.
12-04-2022, 09:57 AM (This post was last modified: 12-04-2022, 10:10 AM by Cam12.
Edit Reason: Grammar
)
RE: PSG Data from Sleep Study - EDF Formats
I attempted to get my PSG RAW data from OHSU Sleep Lab but they said it was in a special “proprietary” ResMed format for which there is no available patient software.
I recently had another PSG and am going to request that data. If I get the same answer, in reading HIPPA regulations in the US, this appears to be a violation of HIPPA rules which require the medical records to be provided and, to be provided in a format that can be easily accessed and understood.
It simply appears that ResMed and medical providers are breaking the law. They’ll probably claim that they are protecting “proprietary” licensed software. Unfortunately, this is not a good legal argument withhold medical records from patients.
Possible class action!? I’ll post if it happens. I am determined.
Why? = Prior diagnosed with Sleep Apnea and severe PLMD. PGS results for approx 4hrs: 40 awakenings; 89 arousals (83 unspecified/“spontaneous”, 6 CSA related, AI=20.9/hr); sleep efficiency 59%; approx. 70% N2 sleep, 0% N3; 108 sleep transitions (>13/hr is severe/extreme, mine=27.7/hr), PLM Index 7.5/hr (mild) and “spontaneous” arousal index of 20.9/hr. Physician, embarrassed with the news, refused to watch 2, 2.5 minute videos (each 20 min at 10x speed) I took during study showing repetitive, almost continuous PLMS with arousals. No interest in determining cause of “spontaneous” arousals. Now diagnosed with Sleep Apnea only. Now my wife and kids just think I’m lazy.
You, me, us….deserve better. I encourage everyone to take their own videos of their PSG to keep em’ honest. The answer to overworked health care workers, which I sympathize with, is not providing lower-quality care.
Machine: ResMed AirCurve 10 VAuto Mask Type: Not using mask Mask Make & Model: none Humidifier: none CPAP Pressure: none CPAP Software: Not using software
I've also been unable to get the raw PSG data and agree it seems a violation. How can any machine be FDA approved if it can't export records for the patient? I've had this with other data collecting devices too so it appears to be a problem as healthcare becomes more data driven.
Anyone have success eventually getting the records?
The government doesn't seem to care much about HIPAA violations of this type so it's possibly better to attack the FDA approval of the machines and force the manufacturers to alter designs.